3pm-8pm

Lobby Desk

Registrations

8am-9am

Grand Ballroom Pre-function Area

Registrations

9am-10am

Grand Ballroom

Members Speed Updating Session (IAPO members only)

Jolanta Bilińska, IAPO & Patients Safety Foundation

Penney Cowan, IAPO & American Chronic Pain Association

10am-11am

Grand Ballroom

IAPO's Annual General Meeting (IAPO members only)

Jolanta Bilińska, IAPO & Patients Safety Foundation

Penney Cowan, IAPO & American Chronic Pain Association

Hussain Jafri, IAPO & Alzheimer's Pakistan

11.30am-11.50am

Grand Ballroom

8th Global Patients Congress Welcome and Introduction

Jolanta Bilińska, IAPO & Patients Safety Foundation

Penney Cowan, IAPO & American Chronic Pain Association

Kawaldip Sehmi, IAPO

11.50am-12.40pm

Grand Ballroom

Keynote Speech: Patient Empowerment through Consortium and Partnerships

Chair: Jolanta Bilińska, IAPO & Patients Safety Foundation

Speaker: Linda Porter, National Institutes of Health (NIH) (Presentation)

Discussant: Penney Cowan, IAPO & American Chronic Pain Association (Presentation and Video)

12.40pm-1.30pm

Grand Ballroom

Keynote Speech: Patient Empowerment through Policy and Advocacy

2.30pm-3.30pm

Grand Ballroom

IAPO Strategy 2018-2020

Chairs: Jolanta Bilińska, IAPO & Patients Safety Foundation and Penney Cowan, IAPO & American Chronic Pain Association

Speakers:

Kawaldip Sehmi, IAPO (Presentation)

Danjuma Adda, Center for Initiative and Development Taraba (CFID) Taraba & Chagro-Care Trust (CCT) (Presentation)

Ratna Devi, IAPO & DakshamA Health & Indian Alliance of Patient Groups (IAPG) (Presentation)

4pm-5.30pm

Grand Ballroom

Workshop: Advocacy on issues in Biotherapeutics and Cell and Gene Therapies using IAPO's Advocacy Fieldbook and Biosimilars Toolkit (Presentations)

Durhane Wong-Rieger, Rare Disease International 

May Orfali, Pfizer

5.30pm-6pm

Grand Ballroom

Feedback and Takeaways

Jolanta Bilińska, IAPO & Patients Safety Foundation

7am-8am

Grand Ballroom Pre-function Area

Registrations

8am-8.15am

Grand Ballroom

Summary Day 1 and Introduction Day 2

Jolanta Bilińska, IAPO & Patients Safety Foundation

Penney Cowan, IAPO & American Chronic Pain Association

8.15am-9.05am

Grand Ballroom

Panel: Patient Empowerment in Universal Health Coverage

Chair: Neda Milevska-Kostova, IAPO & Centre for Regional Policy Research and Cooperation “Studiorum”

Speakers:

Peter Boyle, International Prevention Research Institute (iPRI) (Video presentation)

Regina Namata Kamoga, Community Health and Information Network (CHAIN) Uganda (Presentation)

Ratna Devi, IAPO & DakshamA Health & Indian Alliance of Patient Groups (IAPG) (Presentation)

9.05am-10.15am

Grand Ballroom

Panel: Patient Empowerment in Regulation

Chair: Andrew Spiegel, IAPO & Global Colon Cancer Association (Presentation)

Speakers:

Margareth Ndomondo-Sigonda, African Union - New Partnership for Africa's Development (NEPAD) Agency (Video Presentation)

Nathalie Bere, European Medicines Agency (EMA) (Presentation)

Andrea Furia-Helms, U.S. Food and Drug Administration (FDA) (Presentation)

Russell McGowan, Health Care Consumers Association of the ACT (Presentation)

10.45am-12.15pm

Grand Ballroom

Panel: Patient Empowerment in Research

Chair: Hussain Jafri, IAPO & Alzheimer's Pakistan

Speakers:

Katharina Kovacs Burns, Best Medicines Coalition of Canada & University of Alberta & Alberta Health Services (Presentation)

Christine Janus, International Alliance of Dermatology Patient Organizations (IADPO) (Presentation)

Amy Price, The BMJ (Presentation and Additional resource)

Annekatrin Krause, Novartis (Presentation) 

Marta Nowotarska, Novo Nordisk A/S & Kawaldip Sehmi, IAPO (Presentation)

Lisa Stewart, Patient-Centered Outcomes Research Institute (PCORI) (Presentation)    

1.15pm-3.15pm

Grand Ballroom

Panel: Patient Empowerment for Global Advocacy and Multistakeholder Collaboration

Chair: Kawaldip Sehmi, IAPO 

Speakers:

Janis Bernat, International Federation of Pharmaceutical Manufacturers & Associations (IFPMA) (Presentation)

Maria Pia Ruffilli, Pfizer (Presentation not available)

Jay Purdy, Pfizer (Presentation not available)

3.15pm-3.45pm

Grand Ballroom

Feedback and Takeaways & Introduction Day 3

Jolanta Bilińska, IAPO & Patients Safety Foundation

4.15pm

(Room TBC)

Group Photo

5pm-6pm

Pinecrest

Side event: WHO Patients for Patient Safety

Helen Haskell, Mothers Against Medical Error & WHO Patients for Patient Safety Advisory Group (Presentation)

Hussain Jafri, IAPO & Alzheimer's Pakistan & WHO Patients for Patient Safety Advisory Group (Presentation 1 and Presentation 2)

Regina Namata Kamoga, Community Health and Information Network Uganda & WHO Patients for Patient Safety Advisory Group (Presentation)

Jolanta Bilińska, IAPO & Patients Safety Foundation (Presentation)

5pm-6pm

Killian

Side event: Role of Experts Patients in Patient Engagement and Empowerment

Ruth Wilson, Teva Pharmaceuticals

Lili Radloff, Teva Pharmaceuticals

René Brooks, Black Girls Lost Keys

6pm-7pm

Killian

Side event: Role of Caregivers and Self Care in Healthcare

Rick Greene, International Alliance of Carer Organizations (IACO) (Presentation)

Meagan Bates, EMD Serono (Presentation and Video)

Fadwa Sibai, Bayer (Presentation)

6pm-7pm

Pinecrest

Side event: Fight the Fakes

Janis Bernat, International Federation of Pharmaceutical Manufacturers & Associations (IFPMA) (Presentation and video)

Geoffroy Bessaud, Sanofi (Presentation and Video)

9am-11.30am

Pinecrest, Killian and Hammocks

Parallel Sessions: Regional Networking

12.30pm-2pm

Pinecrest, Killian and Hammocks

Parallel Sessions: Regional Networking