PRE EVENT - Wednesday 23 May 2018

3pm-8pm                 Registrations

Lobby Desk        

 

 

DAY 1 - Thursday 24 May 2018

8am-9am

Datran Ballroom

BREAKFAST

8am-9am

Grand Ballroom Pre-function Area

Registrations

9am-10am

Grand Ballroom

Members Speed Updating Session (IAPO members only)

Jolanta Bilińska, IAPO & Patients Safety Foundation

Penney Cowan, IAPO & American Chronic Pain Association

10am-11am

Grand Ballroom

IAPO's Annual General Meeting (IAPO members only)

Jolanta Bilińska, IAPO & Patients Safety Foundation

Penney Cowan, IAPO & American Chronic Pain Association

Hussain Jafri, IAPO & Alzheimer's Pakistan

11am-11.30am

Grand Ballroom - Exhibition Area

COFFEE BREAK & EXHIBITION

11.30am-11.50am

Grand Ballroom

8th Global Patients Congress Welcome and Introduction

Jolanta Bilińska, IAPO & Patients Safety Foundation

Penney Cowan, IAPO & American Chronic Pain Association

Kawaldip Sehmi, IAPO

11.50am-12.40pm

Grand Ballroom

Keynote Speech: Patient Empowerment through Consortium and Partnerships

Chair: Jolanta Bilińska, IAPO & Patients Safety Foundation

Speaker: Linda Porter, National Institutes of Health (NIH)

Discussant: Penney Cowan, IAPO & American Chronic Pain Association

12.40pm-1.30pm

Grand Ballroom

Keynote Speech: Patient Empowerment through Policy and Advocacy

Chair: Jolanta Bilińska, IAPO & Patients Safety Foundation
Speaker: Yasmin Rashid, Thalassaemia Society of Pakistan
Discussant: Amber Huett-Garcia, Obesity Action Coalition and Teach For America

1.30pm-2.30pm

Datran Ballroom

LUNCH

2.30pm-3.30pm

Grand Ballroom

IAPO Strategy 2018-2020

Chairs: Jolanta Bilińska, IAPO & Patients Safety Foundation and Penney Cowan, IAPO & American Chronic Pain Association

Speakers:

Kawaldip Sehmi, IAPO

Danjuma Adda, Center for Initiative and Development Taraba (CFID) Taraba & Chagro-Care Trust (CCT)

Ratna Devi, IAPO & DakshamA Health & Indian Alliance of Patient Groups (IAPG)

3.30pm-4pm

Grand Ballroom - Exhibition Area

COFFEE BREAK & EXHIBITION

4pm-5.30pm

Grand Ballroom

Workshop: Advocacy on issues in Biotherapeutics and Cell and Gene Therapies using IAPO's Advocacy Fieldbook and Biosimilars Toolkit

Durhane Wong-Rieger, Rare Disease International

May Orfali, Pfizer

5.30pm-6pm

Grand Ballroom

Feedback and Takeaways

Jolanta Bilińska, IAPO & Patients Safety Foundation

7pm-10pm

Datran Ballroom

NETWORKING DINNER

 

DAY 2 - Friday 25 May 2018

7am-8am

Datran Ballroom

BREAKFAST

7am-8am

Grand Ballroom Pre-function Area

Registrations

8am-8.15am

Grand Ballroom

Summary Day 1 and Introduction Day 2

Jolanta Bilińska, IAPO & Patients Safety Foundation

Penney Cowan, IAPO & American Chronic Pain Association

8.15am-9.05am

Grand Ballroom

Panel: Patient Empowerment in Universal Health Coverage

Chair: Neda Milevska-Kostova, IAPO & Centre for Regional Policy Research and Cooperation “Studiorum”

Speakers:

Ratna Devi, IAPO & DakshamA Health & Indian Alliance of Patient Groups (IAPG)

Peter Boyle, International Prevention Research Institute (iPRI)

9.05am-10.15am

Grand Ballroom

Panel: Patient Empowerment in Regulation

Chair: Andrew Spiegel, IAPO & Global Colon Cancer Association

Speakers:

Margareth Ndomondo-Sigonda, African Union - New Partnership for Africa's Development (NEPAD) Agency

Nathalie Bere, European Medicines Agency (EMA)

Andrea Furia-Helms, U.S. Food and Drug Administration (FDA)

Russell McGowan, Health Care Consumers Association of the ACT

10.15am-10.45am

Grand Ballroom - Exhibition Area

COFFEE BREAK & EXHIBITION

10.45am-12.15pm

Grand Ballroom

Panel: Patient Empowerment in Research

Chair: Hussain Jafri, IAPO & Alzheimer's Pakistan

Speakers:

Katharina Kovacs Burns, Best Medicines Coalition of Canada & University of Alberta & Alberta Health Services

Christine Janus, International Alliance of Dermatology Patient Organizations (IADPO)

Amy Price, The BMJ

Annekatrin Krause, Novartis 

Marta Nowotarska, Novo Nordisk A/S & Kawaldip Sehmi, IAPO

Lisa Stewart, Patient-Centered Outcomes Research Institute (PCORI)    

12.15pm-1.15pm

Datran Ballroom

LUNCH

1.15pm-3.15pm

Grand Ballroom

Panel: Patient Empowerment for Global Advocacy and Multistakeholder Collaboration

Chair: Kawaldip Sehmi, IAPO 

Speakers:

Janis Bernat, International Federation of Pharmaceutical Manufacturers & Associations (IFPMA)

Maria Pia Ruffilli, Pfizer

Jay Purdy, Pfizer

Ruth Wilson, Teva Pharmaceuticals

Lasse Funch Jacobsen, Novo Nordisk A/S & Camilla Krogh Lauritzen, LEO

Antonio Arce, Novartis & Myrna Burgos, Policy Wisdom LLC

Kate Beale, Pharmaceutical Research and Manufacturers of America (PhRMA)

Erik Kreyberg Normann, International Hospital Federation (IHF) & Norwegian Hospital and Health Service Association

3.15pm-3.45pm

Grand Ballroom

Feedback and Takeaways & Introduction Day 3

Jolanta Bilińska, IAPO & Patients Safety Foundation

3.45pm-4.15pm

Grand Ballroom - Exhibitio Area

COFFEE BREAK & EXHIBITION

4.15pm

(Room TBC)

Group Photo

5pm-6pm

Pinecrest

Side event: WHO Patients for Patient Safety

Kathyana Aparicio, World Health Organization

Helen Haskell, Mothers Against Medical Error & WHO Patients for Patient Safety Advisory Group

Hussain Jafri, IAPO & Alzheimer's Pakistan & WHO Patients for Patient Safety Advisory Group

Regina Namata Kamoga, Community Health and Information Network Uganda & WHO Patients for Patient Safety Advisory Group

Jolanta Bilińska, IAPO & Patients Safety Foundation

5pm-6pm

Killian

Side event: Role of Expert Patients in Universal Health Coverage 

Ruth Wilson, Teva Pharmaceuticals

Lili Radloff, Teva Pharmaceuticals

René Brooks, Black Girls Lost Keys

6pm-7pm

Killian

Side event: Role of Caregivers and Self Care in Healthcare

Penney Cowan, IAPO & American Chronic Pain Association

Rick Greene, International Alliance of Carer Organizations (IACO)

Meagan Bates, EMD Serono

Fadwa Sibai, Bayer

6pm-7pm

Pinecrest

Side event: Fight the Fakes

Janis Bernat, International Federation of Pharmaceutical Manufacturers & Associations (IFPMA)

Geoffroy Bessaud, Sanofi

 

DAY 3 - Saturday 26 May 2018

8am-9am

Datran Ballroom

BREAKFAST

9am-11.30am

Pinecrest, Killian and Hammocks

Parallel Sessions: Regional Networking

11.30am-12.30pm

Datran Ballroom

LIGHT LUNCH

12.30pm-2pm

Pinecrest, Killian and Hammocks

Parallel Sessions: Regional Networking

2pm END OF CONGRESS