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Both speakers bring a wealth of experience and new ideas to the table about patient advocacy and how to boost reach and impact.
An entrepreneurial approach with Dr Nicolas Sireau
Dr Nicolas Sireau is Chairman and CEO of the AKU Society, a patient group that helps people with Alkaptonuria, a rare genetic disease that affects both his children. He brings an entrepreneurial approach to social problems and is finding new ways to attract investment in rare diseases.
Previously, Nick worked as CEO of SolarAid, an international NGO bringing solar power to Africa. He is a fellow of the Ashoka Fellowship of Social Entrepreneurs and has a PhD in the social psychology of social movements. He is the editor of ‘Rare Diseases: Challenges and Opportunities for Social Entrepreneurs’ (Greenleaf 2013) and is a TEDx talk speaker, having presented on ‘Fundamental Diseases’ in 2012.
A legislative approach with Anders Olauson
Anders Olauson is President of the European Patients Forum, Founder and Director of the Agrenska Centre, and Board member for EURORDIS.
He is an expert in addressing care, therapies, policy and regulation on rare diseases through health legislation (up to global regional treaties level). Anders works with representatives from hospitals, education, labour and other key actors in the field of rare diseases, and will bring his experience in high-level advocacy and working with different stakeholders to Congress.
Register for Congress: places are filling up fast
Calling all IAPO members - please register for Congress as soon as possible. Your organization is entitled to one free place, but please note that places are strictly limited. We have received a lot of registrations already this year, so even though you are entitled to a free place, please register as soon as possible or you might not be able to secure a place.
The early bird discount for additional places expires on 31 December 2015. If you are planning to book for yourself and a colleague, then book by this date for the cheapest cost.
Find out more
Register for Congress via our How to Attend page and find out more information on our official website. Keep up to date with the latest Congress news by liking our Facebook page, following us on Twitter or using the #GPC2016 hashtag.
