Events

Las Enfermedades Raras (ER) son en su mayoría enfermedades graves, crónicas y progresivas que producen una alta carga familiar y social y plantean retos a los sistemas de salud y protección social muy distintos a los de las enfermedades comunes.
The 7th Global Patients Congress will feature a wide range of excellent speakers.
There are two months to go until the 7th Global Patients Congress ! We know that our members are working hard and are incredibly busy but please don’t forget to register now if you intend to join us. We are pulling together final preparations and do not want you to miss out.
Por favor ayúdenos a examinar el Día de Solidaridad con el Paciente 2015.
We have developed a resources pack to help you apply for funding to attend Congress.
Welcome to the latest Global Patients Congress newsletter from a cold IAPO office! Momentum around the event is building and the programme is shaping up to be the best ever.
World Cancer Day unites the world’s population in the fight against cancer. It aims to save millions of preventable deaths each year by raising awareness and educating about the disease, pressing governments and individuals across the world to take action.
El 29 de febrero 2016, las personas viviendo con o afectados por las enfermedades raras, organizaciones de pacientes, políticos, cuidadores, profesionales médicos, investigadores e industria se juntarán para celebrar el noveno Día Mundial de las Enfermedades raras.
Technological advances in scientific research have placed us in a universe of knowledge that today allows us to speak of more than 8,000 rare diseases (EPOF) that affect 8% of the world population, as determined by WHO. However, governments are not following at the same pace, causing a gap between knowledge of treatment and access to treatment.
En diciembre 2015, 34 grupos de pacientes de toda América Latina se reunieron en Buenos Aires y participaron activamente a la Cumbre latinoamericana de grupos de pacientes sobre los bioterapeuticos, co-organizada por IAPO y GAfPA ( Global Alliance for Patient A ccess) y patrocinada por AbbVie .

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