Rare Disease Day

Saturday, 28 February 2015

Rare Disease Day 2015: ‘Living with a rare condition. Day-by-day, hand-in-hand'

The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives. The campaign targets primarily the general public and also seeks to raise awareness amongst policy makers, public authorities, industry representatives, researchers, health professionals and anyone who has a genuine interest in rare diseases.

Since Rare Disease Day was first launched by EURORDIS and its Council of National Alliances in 2008, thousands of events have taken place throughout the world reaching hundreds of thousands of people and resulting in a great deal of media coverage.

Many different IAPO members will be involved in the day. 

We stand with IAPO members, patients and organizations around the world to raise awareness of rare diseases, the impact they have on patients and that everyone should have access to the treatment they need.

Rare Disease Day is open to everyone! 

Individuals, patients, patient organizations, health professionals, researchers, drug developers, public health authorities - the more people involved the better! There are many different ways to take part.
 

Official video

 

 

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