News Archive: February 2019

Nothing About You Without You

Partnerships
Contributed by Camilla Krogh Lauritzen, Chief Patient Officer, LEO Pharma 28 February is Rare Disease Day. Hardly any surprise to anyone who is committed to changing the status quo for the millions of people affected by one or more of the 7000+ rare diseases. But then again, it may be news for many...

Rare Disease Day 2019: bridging health and social care

Events
On 28 February 2019, people living with or affected by a rare disease, patient organizations, politicians, carers, medical professionals, researchers and industry will come together to celebrate the twelfth annual Rare Disease Day. A patient-led campaign, organizations in over 70 countries and...

Sexual life and Multiple Sclerosis: A video animation

Members
Sexual intimacy challenges can be a difficult topic to talk about, even though common for people with and without chronic conditions. To get the conversation going about sex and multiple sclerosis (MS), MS International Federation (MSIF) – an IAPO member – has recently launched an animation looking...

Momentum on Global Action for Patient safety continues to build

Press and media
We at IAPO are extremely delighted that the 144th Session of the WHO Executive Board (EB), deliberated on the agenda item ‘Global Action on Patient Safety’ and adopted the Executive Board Resolution ‘ Global Action on Patient Safety’ on 31 January 2019 including the establishment of an annual World...

Improving patient safety and fighting fake medicines in Europe

Press and media
The European Medicines Verification Organisation, an IAPO partner through the Fight the Fakes campaign launched the world’s first digital verification system covering the medicines supply chain across Europe that promises greater security against falsified medicines. The launch of the world first...