PRE EVENT - Wednesday 23 May 2018
3pm-8pm Lobby Desk |
Registrations |
DAY 1 - Thursday 24 May 2018
8am-9am Datran Ballroom |
BREAKFAST |
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8am-9am Grand Ballroom Pre-function Area |
Registrations |
9am-10am Grand Ballroom |
Members Speed Updating Session (IAPO members only)Jolanta Bilińska, IAPO & Patients Safety Foundation Penney Cowan, IAPO & American Chronic Pain Association |
10am-11am Grand Ballroom |
IAPO's Annual General Meeting (IAPO members only)Jolanta Bilińska, IAPO & Patients Safety Foundation Penney Cowan, IAPO & American Chronic Pain Association Hussain Jafri, IAPO & Alzheimer's Pakistan |
11am-11.30am Grand Ballroom - Exhibition Area |
COFFEE BREAK & EXHIBITION |
11.30am-11.50am Grand Ballroom |
8th Global Patients Congress Welcome and IntroductionJolanta Bilińska, IAPO & Patients Safety Foundation Penney Cowan, IAPO & American Chronic Pain Association Kawaldip Sehmi, IAPO |
11.50am-12.40pm Grand Ballroom |
Keynote Speech: Patient Empowerment through Consortium and PartnershipsChair: Jolanta Bilińska, IAPO & Patients Safety Foundation Speaker: Linda Porter, National Institutes of Health (NIH) (Presentation) Discussant: Penney Cowan, IAPO & American Chronic Pain Association (Presentation and Video) |
12.40pm-1.30pm Grand Ballroom |
Keynote Speech: Patient Empowerment through Policy and AdvocacyChair: Jolanta Bilińska, IAPO & Patients Safety Foundation
Speaker: Yasmin Rashid, Thalassaemia Society of Pakistan (Presentation)
Discussant: Amber Huett-Garcia, Obesity Action Coalition and Teach For America (Presentation)
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1.30pm-2.30pm Datran Ballroom |
LUNCH |
2.30pm-3.30pm Grand Ballroom |
IAPO Strategy 2018-2020Chairs: Jolanta Bilińska, IAPO & Patients Safety Foundation and Penney Cowan, IAPO & American Chronic Pain Association Speakers: Kawaldip Sehmi, IAPO (Presentation) Danjuma Adda, Center for Initiative and Development Taraba (CFID) Taraba & Chagro-Care Trust (CCT) (Presentation) Ratna Devi, IAPO & DakshamA Health & Indian Alliance of Patient Groups (IAPG) (Presentation) |
3.30pm-4pm Grand Ballroom - Exhibition Area |
COFFEE BREAK & EXHIBITION |
4pm-5.30pm Grand Ballroom |
Workshop: Advocacy on issues in Biotherapeutics and Cell and Gene Therapies using IAPO's Advocacy Fieldbook and Biosimilars Toolkit (Presentations)Durhane Wong-Rieger, Rare Disease International May Orfali, Pfizer |
5.30pm-6pm Grand Ballroom |
Feedback and TakeawaysJolanta Bilińska, IAPO & Patients Safety Foundation |
7pm-10pm Datran Ballroom |
NETWORKING DINNER |
DAY 2 - Friday 25 May 2018
7am-8am Datran Ballroom |
BREAKFAST |
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7am-8am Grand Ballroom Pre-function Area |
Registrations |
8am-8.15am Grand Ballroom |
Summary Day 1 and Introduction Day 2Jolanta Bilińska, IAPO & Patients Safety Foundation Penney Cowan, IAPO & American Chronic Pain Association |
8.15am-9.05am Grand Ballroom |
Panel: Patient Empowerment in Universal Health CoverageChair: Neda Milevska-Kostova, IAPO & Centre for Regional Policy Research and Cooperation “Studiorum” Speakers: Peter Boyle, International Prevention Research Institute (iPRI) (Video presentation) Regina Namata Kamoga, Community Health and Information Network (CHAIN) Uganda (Presentation) Ratna Devi, IAPO & DakshamA Health & Indian Alliance of Patient Groups (IAPG) (Presentation) |
9.05am-10.15am Grand Ballroom |
Panel: Patient Empowerment in RegulationChair: Andrew Spiegel, IAPO & Global Colon Cancer Association (Presentation) Speakers: Margareth Ndomondo-Sigonda, African Union - New Partnership for Africa's Development (NEPAD) Agency (Video Presentation) Nathalie Bere, European Medicines Agency (EMA) (Presentation) Andrea Furia-Helms, U.S. Food and Drug Administration (FDA) (Presentation) Russell McGowan, Health Care Consumers Association of the ACT (Presentation) |
10.15am-10.45am Grand Ballroom - Exhibition Area |
COFFEE BREAK & EXHIBITION |
10.45am-12.15pm Grand Ballroom |
Panel: Patient Empowerment in ResearchChair: Hussain Jafri, IAPO & Alzheimer's Pakistan Speakers: Katharina Kovacs Burns, Best Medicines Coalition of Canada & University of Alberta & Alberta Health Services (Presentation) Christine Janus, International Alliance of Dermatology Patient Organizations (IADPO) (Presentation) Amy Price, The BMJ (Presentation and Additional resource) Annekatrin Krause, Novartis (Presentation) Marta Nowotarska, Novo Nordisk A/S & Kawaldip Sehmi, IAPO (Presentation) Lisa Stewart, Patient-Centered Outcomes Research Institute (PCORI) (Presentation) |
12.15pm-1.15pm Datran Ballroom |
LUNCH |
1.15pm-3.15pm Grand Ballroom |
Panel: Patient Empowerment for Global Advocacy and Multistakeholder CollaborationChair: Kawaldip Sehmi, IAPO Speakers: Janis Bernat, International Federation of Pharmaceutical Manufacturers & Associations (IFPMA) (Presentation) Maria Pia Ruffilli, Pfizer (Presentation not available) Jay Purdy, Pfizer (Presentation not available) Ruth Wilson, Teva Pharmaceuticals (Presentation) Lasse Funch Jacobsen, Novo Nordisk A/S (Presentation) Camilla Krogh Lauritzen, LEO (Presentation) (Presentation) Antonio Arce, Novartis & Myrna Burgos, Policy Wisdom LLC (Presentation) Kate Beale, Pharmaceutical Research and Manufacturers of America (PhRMA) (Presentation) Erik Kreyberg Normann, International Hospital Federation (IHF) & Norwegian Hospital and Health Service Association (Presentation) |
3.15pm-3.45pm Grand Ballroom |
Feedback and Takeaways & Introduction Day 3Jolanta Bilińska, IAPO & Patients Safety Foundation |
3.45pm-4.15pm Grand Ballroom - Exhibitio Area |
COFFEE BREAK & EXHIBITION |
4.15pm (Room TBC) |
Group Photo |
5pm-6pm Pinecrest |
Side event: WHO Patients for Patient SafetyHelen Haskell, Mothers Against Medical Error & WHO Patients for Patient Safety Advisory Group (Presentation) Hussain Jafri, IAPO & Alzheimer's Pakistan & WHO Patients for Patient Safety Advisory Group (Presentation 1 and Presentation 2) Regina Namata Kamoga, Community Health and Information Network Uganda & WHO Patients for Patient Safety Advisory Group (Presentation) Jolanta Bilińska, IAPO & Patients Safety Foundation (Presentation) |
5pm-6pm Killian |
Side event: Role of Experts Patients in Patient Engagement and EmpowermentRuth Wilson, Teva Pharmaceuticals Lili Radloff, Teva Pharmaceuticals René Brooks, Black Girls Lost Keys |
6pm-7pm Killian |
Side event: Role of Caregivers and Self Care in HealthcareRick Greene, International Alliance of Carer Organizations (IACO) (Presentation) Meagan Bates, EMD Serono (Presentation and Video) Fadwa Sibai, Bayer (Presentation) |
6pm-7pm Pinecrest |
Side event: Fight the FakesJanis Bernat, International Federation of Pharmaceutical Manufacturers & Associations (IFPMA) (Presentation and video) Geoffroy Bessaud, Sanofi (Presentation and Video) |
DAY 3 - Saturday 26 May 2018
8am-9am Datran Ballroom |
BREAKFAST |
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9am-11.30am Pinecrest, Killian and Hammocks |
Parallel Sessions: Regional Networking |
11.30am-12.30pm Datran Ballroom |
LIGHT LUNCH |
12.30pm-2pm Pinecrest, Killian and Hammocks |
Parallel Sessions: Regional Networking |
2pm | END OF CONGRESS |