The International Conference of Drug Regulatory Authorities (ICDRA) is an annual event hosted for the benefit of the WHO Member States and their national medicines regulatory authorities (NMRAs); many non-State actors attend a pre-ICDRA conference to share their views with NMRAs. The 17th pre-ICDRA...
New York witnessed a rare event on 11 November 2016. After decades of hard work, the rare diseases patient-voice final reached the ears of the United Nations and the world. The UN Headquarters on 405 East 42nd Street saw the launch of the NGO Committee for Rare Diseases (NGOCRD) The NGOCRD is a...
Dalilah Kalla, IAPO representative from member Lupus Alert (Mauritius), represented IAPO at two WHO and Civil Society meetings on Non-Communicable Diseases in Mauritius. By Dalilah Kalla, from Lupus Alert The establishment of an African non-State actors’ network and the development of a regional...
UK Supreme Court (UKSC) judgment in Montgomery v Lanarkshire Health Board has closed the gap between ‘legal consent’, ‘informed consent’ and the ‘best interest’ of the patients. The full judgment, the point of law decided and the rationale for the decision (ratio decidendi) of this important case...
Dr. Androulla Eleiftheriou is the Executive Director of Thalassaemia International Federation (TIF) and an IAPO Board Member. In this specially commissioned article, she explores how patients at TIF have led the way in patient centred medical education. TIF set-up an innovative online MSc degree in...
WHO World Health Assembly (May 2016), WHO Regional Committee Meetings (Sep-Oct 2016) and the UN General Assembly Debate (Sep 2016) had great discussions on SDG 2030, UHC and health workforce strengthening. Kawaldip Sehmi, our CEO, has assembled critical thinking on this matter of some of the '...
Dr. Matthias Wienold (IAPO Treasurer and Board Member) and Stijntje Dijk (Liaison Officer International Federation of Medical Students Associations (IFMSA) ) Stijntje, whom you all met at our Global Patients Congress 2016, and I held a joint workshop at the Association for Medical Education in...
IAPO is part of Get Real , a multi-stakeholder research project of the Innovative Medicines Initiative (IMI) that aims to investigate how real-world evidence can be effectively used in the drug development process. Within the research consortium, IAPO is carrying out research on patients’...
Board member Hussain Jafri reporting from the multi-stakeholder hearing of the UN General Assembly High-Level Summit on migrants and refugees 18-22 July 2016, United Nations, New York The most vulnerable patients in the world From the jungles of Central America, deserts of North Africa to the...
Informe de Kawaldip Sehmi, CEO de IAPO, sobre la reunión estratégica de FIFARMA en la ciudad de Panamá ! Un buen inicio: invite a los pacientes a observar! Como todos nosotros, es posible que usted esté buscando en Internet el significado del acrónimo FIFARMA . ¡Encontrará muy poco sobre él! La...

Pages