Noticias

WHO Western Pacific Region getting ready for universal health coverage by 2030!

Members
The WHO Western Pacific Region (WHO WPR ) held its first technical advisory group on universal health coverage 12-14 December 2016 in Manila Philippines. This meeting was attended by many State and non-State actors in the Region. IAPO was represented by our member Josef De Guzman, President of Psoriasis Philippines.

Why we should always be there

Members
In November 2016, Anna Oliva from Acción Psoriasis, the Spanish Association of Patients of Psoriasis and Arthritis Psoriatic, had the opportunity to participate in the European He althcare Industry Training: Compliance Certification Program. In this article, she shared her experience and insight with us.

And finally…. animals as seasonal good health totems around the world

Members
This year our Christmas and New Year’s Card featured the mythical Fire-Fox; a symbol of good health and prosperity in the Suomi Tribes (Lapland Finland). After it went public, we were contacted by many patient organizations who wanted to share their own regional and national totem animal stories...

New WHO Designated Technical Officer for IAPO

Partnerships
New Year is a great time for change and growth. Nittita Prasopa-Plaizier, our designated technical officer (DTO) for the WHO-IAPO official relationship, will move on to bigger and better things in 2017. Many of you met Nittita at our Global Patient Congress in April 2016. Nittita was the Programme...

Global patient movement welcomes new United Nations Secretary General

Partnerships
On 1st January 2017, a new era begins at the United Nations. Mr. António Guterres, the former Portuguese prime minister, will become the next UN Secretary General, replacing Ban Ki-moon. http://bit.ly/2hhWEpq Mr. Guterres was the Prime Minister of Portugal from 1995 to 2002 and the UN High...

Patient movement calls for universal health coverage to become a reality for all

Events
On Saturday 3 December, a global patient movement will rally together on Patient Solidarity Day in a united call for patient-centred universal health coverage for all by 2030. Around 200 leading patient organizations across the world are expected to join forces on Saturday to hold governments and...

Sovereignty preventing global drug regulation harmonization-International Conference of Drug Regulatory Authorities

Policy
The International Conference of Drug Regulatory Authorities (ICDRA) is an annual event hosted for the benefit of the WHO Member States and their national medicines regulatory authorities (NMRAs); many non-State actors attend a pre-ICDRA conference to share their views with NMRAs. The 17th pre-ICDRA...

Historic launch of the UN NGO Committee for Rare Diseases at the UN New York

Members
New York witnessed a rare event on 11 November 2016. After decades of hard work, the rare diseases patient-voice final reached the ears of the United Nations and the world. The UN Headquarters on 405 East 42nd Street saw the launch of the NGO Committee for Rare Diseases (NGOCRD) The NGOCRD is a...

A regional NCD Alliance in Africa

Members
Dalilah Kalla, IAPO representative from member Lupus Alert (Mauritius), represented IAPO at two WHO and Civil Society meetings on Non-Communicable Diseases in Mauritius. By Dalilah Kalla, from Lupus Alert The establishment of an African non-State actors’ network and the development of a regional...

UK Supreme Court closes the gap between ‘legal consent’, ‘informed consent’ and the ‘best interest’ of the patients!

Policy
UK Supreme Court (UKSC) judgment in Montgomery v Lanarkshire Health Board has closed the gap between ‘legal consent’, ‘informed consent’ and the ‘best interest’ of the patients. The full judgment, the point of law decided and the rationale for the decision (ratio decidendi) of this important case...

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