Noticias

Rare Diseases and Birth Defects Registry in developing countries

Members
Contributed by Thong Meow-Keong, Malaysian Rare Disorders Society (IAPO member) Rare diseases particularly birth defects are a major causes of disability in developing countries (1,2). There is lack of data on birth defects from large population-based studies in the Asia-Pacific region (3). The...

PATIENTS’ RIGHTS HAVE NO BORDERS

Members
On 1 March 2017, Active Citizenship Network is going to celebrate the first anniversary of its EU communication campaign on cross-border healthcare. Foreseen by Directive 2011/24/EU – it’s named Patients’ rights have no borders – with a multi stakeholder conference at the EU Parliament. The...

Anti-counterfeit Network Africa Launched

Members
On 15 February 2016, the Anti-counterfeit Network Africa was launched in Uganda to help in intensifying the fight against production & supply of Counterfeit drugs to ensure patient access to quality medicine. According to WHO, Substandard, spurious, falsely labelled, falsified and counterfeit (...

Resumen de políticas #1: Asistencia sanitaria centrada en el paciente

Members
El plan 2017 de IAPO sobre el empoderamiento y compromiso de sus miembros ( plan ) se centrará en cuatro áreas temáticas principales: asistencia sanitaria centrada en el paciente, acceso, responsabilidad y transparencia, y el tema del Día de la Solidaridad con el Paciente (nuestros miembros lo...

Act globally, think locally. It all leads to a WHO resolution….

Members
Sophie Andersson, Executive Director of the International Federation of Psoriasis Associations (IFPA), returns to the World Health Organization’s 140th Executive Board Session this year where in 2014 IFPA got through a historic resolution recognizing psoriasis as a non-communicable disease and...

Ayúdanos a elegir el tema para el Día de la Solidaridad con el Paciente

Members
Ayúdanos a elegir el tema para el PSD 2017​

IAPO collaborates with iPRI to access epidemiology and statistical support

Partnerships
The International Prevention Research Institute (iPRI) President Professor Peter Boyle signed an important Memorandum of Understanding with our Chair of the Board Jolanta Bilińska to mark the World Cancer Day. The role of patients’ organizations is morphing rapidly from its initial lobbying focus...

Día de la Solidaridad con el Paciente – momentos estelares del 2016 y con mucho ánimo para llegar a diciembre 2017

Members
We are asking for everyone within IAPO’s network to send us suggested topics for the Patient Solidarity Day 2017 theme.

Plan de Empoderamiento y Compromiso 2017 – identificar los temas claves

Members
El 2016 fue un año extraordinario para IAPO y para nuestra comunidad de miembros y colaboradores! Durante el mes de abril, 2016, realizamos el 7mo Congreso Mundial de Pacientes que contó con la presencia de 136 delegados de diferentes disciplinas. En diciembre 2016, los pacientes de todo el mundo...

140th Session of the WHO Executive Board Jan 2017

Events
The World Health Organization’s Executive Board (WHO EB) met for its 140th Session during the week commencing 23rd January 2017. Sophie Andersson, the Executive Director of our member the International Federation of Psoriasis Associations (IFPA), attended this Session. She shared her experience on...

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