Noticias

From collapse to case study: the Castro, birthplace of modern patient advocacy

Policy
In the 1980s, the Castro District of San Francisco was under attack from an unknown and devastating disease that was killing its young men, and attacked by the media, politicians and society that forced it to the brink of collapse.

Meeting new board members: Hussain Jafri

Members
We will be welcoming Hussain Jafri, Secretary General for Alzheimer's Pakistan, to our Governing Board in August 2016.

Meeting new board members: Bejon Misra

Members
We will be welcoming Bejon Misra, the founder of the Consumer Online Foundation, India, to our Governing Board in August 2016. Bejon answered a few questions about his work, what he brings to IAPO and why he is involved in patient advocacy work.

‘NOhep’: eliminando la hepatitis viral antes del 2030

Events
En el Día Mundial de la Hepatitis, 28 julio 2016, la Alianza Mundial Contra la Hepatitis junto con muchas otras organizaciones de la sociedad civil lanzará un movimiento global con el fin de eliminar la hepatitis viral antes del 2030. ​

Tackling diabetes at grassroots level in Uganda

Members
IAPO member, Uganda Platform for Diabetics (UPLAD), has been developing innovative ways to tackle diabetes in community settings. By starting and running ‘Diabetic Camps’ in different locations across Uganda, UPLAD has managed to screen, diagnose and educate many people through one day events.

How an online patient group proved its value to me

Partnerships
IAPO Governing Board Member Matthias Wienold wrote a blog for the British Medical Journal about online patient groups and the value they bring.

Un impulso hacia la Cobertura Universal en Salud: un adelanto para los pacientes en Argentina

Members
La contribución de Isabel Rolando, presidenta de Concebir. Concebir fue fundada hace 20 años y Miembro de la International Alliance of Patients’ Organizations desde el Congreso de Budapest de 2007.

Bladder problems are not an inevitable part of aging

Members
Bladder problems are not an inevitable part of aging. Find out more during World Continence Awareness Week, 20-26 June 2016.

Meeting new board members: Androulla Eleftheriou

Members
We will be welcoming Androulla Eleftheriou, Executive Director of Thalassaemia International Federation, to our Governing Board in August 2016. Androulla answered a few questions about her work, what she brings to IAPO and why she is involved in patient advocacy work.

Meeting new board members: Andrew Spiegel

Members
We will be welcoming Andrew Spiegel, Executive Director of Global Colon Cancer Association, to our Governing Board in August 2016. Andrew answered a few questions about his work, what he brings to IAPO and why he is involved in patient advocacy work.

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