Members

28 February 2017
El 28 de febrero 2017 nos unimos a muchos de nuestros miembros y colegas en la celebración anual del X Día de Enfermedades Raras. El tema de este año es “la investigación” y el slogan del día será ‘la investigación abre un campo de...
We are asking for everyone within IAPO’s network to send us suggested topics for the Patient Solidarity Day 2017 theme.
El 2016 fue un año extraordinario para IAPO y para nuestra comunidad de miembros y colaboradores! Durante el mes de abril, 2016, realizamos el 7mo Congreso Mundial de Pacientes que contó con la presencia de 136 delegados de diferentes disciplinas. En diciembre 2016, los pacientes de...
The WHO Western Pacific Region (WHO WPR ) held its first technical advisory group on universal health coverage 12-14 December 2016 in Manila Philippines. This meeting was attended by many State and non-State actors in the Region. IAPO was represented by our member Josef De Guzman, President of Psoriasis Philippines.
In November 2016, Anna Oliva from Acción Psoriasis, the Spanish Association of Patients of Psoriasis and Arthritis Psoriatic, had the opportunity to participate in the European He althcare Industry Training: Compliance Certification Program. In this article, she shared her experience and insight with us.
This year our Christmas and New Year’s Card featured the mythical Fire-Fox; a symbol of good health and prosperity in the Suomi Tribes (Lapland Finland). After it went public, we were contacted by many patient organizations who wanted to share their own regional and national totem animal...
New York witnessed a rare event on 11 November 2016. After decades of hard work, the rare diseases patient-voice final reached the ears of the United Nations and the world. The UN Headquarters on 405 East 42nd Street saw the launch of the NGO Committee for Rare Diseases (NGOCRD) The NGOCRD is a...
Dalilah Kalla, IAPO representative from member Lupus Alert (Mauritius), represented IAPO at two WHO and Civil Society meetings on Non-Communicable Diseases in Mauritius. By Dalilah Kalla, from Lupus Alert The establishment of an African non-State actors’ network and the development of a...
Dr. Androulla Eleiftheriou is the Executive Director of Thalassaemia International Federation (TIF) and an IAPO Board Member. In this specially commissioned article, she explores how patients at TIF have led the way in patient centred medical education. TIF set-up an innovative online MSc degree in...
IAPO is part of Get Real , a multi-stakeholder research project of the Innovative Medicines Initiative (IMI) that aims to investigate how real-world evidence can be effectively used in the drug development process. Within the research consortium, IAPO is carrying out research on patients’...

Pages

Subscribe to RSS - Members