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21 September 2016
World Alzheimer’s Day (21st of September) was launched in 1994 to mark the 10th anniversary of Alzheimer Disease International (ADI) and has grown significantly since then. ​
La contribución de Isabel Rolando, presidenta de Concebir. Concebir fue fundada hace 20 años y Miembro de la International Alliance of Patients’ Organizations desde el Congreso de Budapest de 2007.
Bladder problems are not an inevitable part of aging. Find out more during World Continence Awareness Week, 20-26 June 2016.
We will be welcoming Androulla Eleftheriou, Executive Director of Thalassaemia International Federation, to our Governing Board in August 2016. Androulla answered a few questions about her work, what she brings to IAPO and why she is involved in patient advocacy work.
We will be welcoming Andrew Spiegel, Executive Director of Global Colon Cancer Association, to our Governing Board in August 2016. Andrew answered a few questions about his work, what he brings to IAPO and why he is involved in patient advocacy work.
We are really pleased to introduce Androulla ​ Eleftheriou and Andrew Spiegel, two of our new Governing Board members, who will begin their terms in August 2016. Both answered a few questions about their work, what they will bring to IAPO and why they are involved in patient advoacacy.
20 June 2016
World Continence Week takes place 20-26 June 2016.
At the Global Patients Congress, five IAPO members were elected to the Governing Board.
El 10 de marzo 2016 se celebrará el undécimo día mundial del riñón. El tema de este año es ‘Niños y enfermedad renal. ¡Actúa a tiempo para prevenirla!’. El día se centrará en mejorar la educación, facilitar la detección precoz y asegurar de que durante toda la vida de un individuo – desde el nacimiento – todos está bien equipado para combatir y controlar la enfermedad renal.
Entre el 4-6 Febrero 2016, EFCCA (The European Federation of Crohn’s and Ulcerative Colitis Associations) junto a GAfPA (Global Alliance for Patient Access), organizaron un taller sobre la defensa de la seguridad del paciente en Barcelona que reunió cerca de 60 representantes de pacientes de un amplio rango de grupos de enfermedades inmunes moduladas y otras organizaciones.​

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