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Contributed by Thong Meow-Keong, Malaysian Rare Disorders Society (IAPO member) Rare diseases particularly birth defects are a major causes of disability in developing countries (1,2). There is lack of data on birth defects from large population-based studies in the Asia-Pacific region (3). The...
On 1 March 2017, Active Citizenship Network is going to celebrate the first anniversary of its EU communication campaign on cross-border healthcare. Foreseen by Directive 2011/24/EU – it’s named Patients’ rights have no borders – with a multi stakeholder conference at the EU Parliament. The...
On 15 February 2016, the Anti-counterfeit Network Africa was launched in Uganda to help in intensifying the fight against production & supply of Counterfeit drugs to ensure patient access to quality medicine. According to WHO, Substandard, spurious, falsely labelled, falsified and counterfeit (...
El plan 2017 de IAPO sobre el empoderamiento y compromiso de sus miembros ( plan ) se centrará en cuatro áreas temáticas principales: asistencia sanitaria centrada en el paciente, acceso, responsabilidad y transparencia, y el tema del Día de la Solidaridad con el Paciente (nuestros miembros lo...
Sophie Andersson, Executive Director of the International Federation of Psoriasis Associations (IFPA), returns to the World Health Organization’s 140th Executive Board Session this year where in 2014 IFPA got through a historic resolution recognizing psoriasis as a non-communicable disease and...
28 February 2017
El 28 de febrero 2017 nos unimos a muchos de nuestros miembros y colegas en la celebración anual del X Día de Enfermedades Raras. El tema de este año es “la investigación” y el slogan del día será ‘la investigación abre un campo de posibilidades infinito’ cuyo objetivo es destacar la importancia de...
We are asking for everyone within IAPO’s network to send us suggested topics for the Patient Solidarity Day 2017 theme.
El 2016 fue un año extraordinario para IAPO y para nuestra comunidad de miembros y colaboradores! Durante el mes de abril, 2016, realizamos el 7mo Congreso Mundial de Pacientes que contó con la presencia de 136 delegados de diferentes disciplinas. En diciembre 2016, los pacientes de todo el mundo...
The WHO Western Pacific Region (WHO WPR ) held its first technical advisory group on universal health coverage 12-14 December 2016 in Manila Philippines. This meeting was attended by many State and non-State actors in the Region. IAPO was represented by our member Josef De Guzman, President of Psoriasis Philippines.

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