Members

In November 2016, Anna Oliva from Acción Psoriasis, the Spanish Association of Patients of Psoriasis and Arthritis Psoriatic, had the opportunity to participate in the European He althcare Industry Training: Compliance Certification Program. In this article, she shared her experience and insight with us.
This year our Christmas and New Year’s Card featured the mythical Fire-Fox; a symbol of good health and prosperity in the Suomi Tribes (Lapland Finland). After it went public, we were contacted by many patient organizations who wanted to share their own regional and national totem animal stories...
New York witnessed a rare event on 11 November 2016. After decades of hard work, the rare diseases patient-voice final reached the ears of the United Nations and the world. The UN Headquarters on 405 East 42nd Street saw the launch of the NGO Committee for Rare Diseases (NGOCRD) The NGOCRD is a...
Dalilah Kalla, IAPO representative from member Lupus Alert (Mauritius), represented IAPO at two WHO and Civil Society meetings on Non-Communicable Diseases in Mauritius. By Dalilah Kalla, from Lupus Alert The establishment of an African non-State actors’ network and the development of a regional...
Dr. Androulla Eleiftheriou is the Executive Director of Thalassaemia International Federation (TIF) and an IAPO Board Member. In this specially commissioned article, she explores how patients at TIF have led the way in patient centred medical education. TIF set-up an innovative online MSc degree in...
IAPO is part of Get Real , a multi-stakeholder research project of the Innovative Medicines Initiative (IMI) that aims to investigate how real-world evidence can be effectively used in the drug development process. Within the research consortium, IAPO is carrying out research on patients’...
Informe de Kawaldip Sehmi, CEO de IAPO, sobre la reunión estratégica de FIFARMA en la ciudad de Panamá ! Un buen inicio: invite a los pacientes a observar! Como todos nosotros, es posible que usted esté buscando en Internet el significado del acrónimo FIFARMA . ¡Encontrará muy poco sobre él! La...
Board Member Joshua Wamboga reports from the World Health Organization Africa's 66th Regional Committee meeting held in Addis Ababa, Ethiopia, 19-23 August 2016 Saving the best for last Africa has a way of dragging out the best for last when it comes to important discussions on health. The World...
9 August 2016
IAPO board member, Joshua Wamboga, participated in the National Cancer Institute’s Directors Meeting in Lyon, France in July 2016, held by the International Prevention Research Institute (iPRI) and Institute of Global Public Health. The event brought together over 100 directors of national cancer...
5 September 2016
The European Lung Foundation is holding a free event in London on how air quality impacts our lung health, where you can hear about the latest research in the field and ask lung health experts your questions.

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