Rare Disease Day

Rare Disease Day Policy Event at the United Nations

21 February 2019
Events
Organised by the NGO Committee co-founders (EURORDIS and Ågrenska) and Rare Diseases International, this is the second high-level event of the NGO Committee for Rare Diseases and will be taking place to mark the occasion of Rare Disease Day 2019 happening on 28 February. Over 30 speakers...

Medical Research Webinar

11 April 2017
Members
This 60 minute webinar offers rare disease patient organizations an overview of the medical research field, introducing the different stages of pre-clinical and clinical research necessary to get from an idea to a treatment delivered to patients. It will be followed by 30 minutes for Q&A.

¡La investigación abre un campo de posibilidades infinito!

28 February 2017
Members
El 28 de febrero 2017 nos unimos a muchos de nuestros miembros y colegas en la celebración anual del X Día de Enfermedades Raras. El tema de este año es “la investigación” y el slogan del día será ‘la investigación abre un campo de posibilidades infinito’ cuyo objetivo es destacar la importancia de...
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