Rare Disease Day

21 February 2019
Organised by the NGO Committee co-founders (EURORDIS and Ågrenska) and Rare Diseases International, this is the second high-level event of the NGO Committee for Rare Diseases and will be taking place to mark the occasion of Rare Disease Day 2019 happening on 28 February. Over 30 speakers...
11 April 2017
This 60 minute webinar offers rare disease patient organizations an overview of the medical research field, introducing the different stages of pre-clinical and clinical research necessary to get from an idea to a treatment delivered to patients. It will be followed by 30 minutes for Q&A.
28 February 2017
28 February of every year, is dedicated to raising awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives. It also targets policy makers, public authorities, industry representatives, researchers, health professionals and anyone who has...
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