Noticias

World Hepatitis Alliance provides free webinar series on patient group advocacy

Resources
The World Hepatitis Alliance (WHA) presents Tools For Change, a three-part webinar series aimed at educating and up skilling viewers on various aspects of advocacy and the tools needed to effectively lobby for change.

Choose your workshops for Congress

Events
Welcome to the latest Global Patients Congress newsletter from a cold IAPO office! Momentum around the event is building and the programme is shaping up to be the best ever.

'We can. I can.' this World Cancer Day

Events
World Cancer Day unites the world’s population in the fight against cancer. It aims to save millions of preventable deaths each year by raising awareness and educating about the disease, pressing governments and individuals across the world to take action.

El Día Mundial de las Enfermedades Raras 2016

Events
El 29 de febrero 2016, las personas viviendo con o afectados por las enfermedades raras, organizaciones de pacientes, políticos, cuidadores, profesionales médicos, investigadores e industria se juntarán para celebrar el noveno Día Mundial de las Enfermedades raras.

Conmemoración del Día Mundial de las Enfermedades Poco Frecuentes

Events
Technological advances in scientific research have placed us in a universe of knowledge that today allows us to speak of more than 8,000 rare diseases (EPOF) that affect 8% of the world population, as determined by WHO. However, governments are not following at the same pace, causing a gap between knowledge of treatment and access to treatment.

Checking progress at WHO

Policy
The World Health Organization (WHO) held the first of its twice-yearly Executive Board meetings for 2016 at the end of January.

Es momento de trepar por nuestra ventana de 15 años

Policy
Dicen que en el pasado, los gobiernos evitaban el escrutinio internacional sobre sus políticas nacionales de salud, aduciendo defensa de la soberanía. Las cosas han cambiado en los últimos quince años, de tal manera que la gobernanza de salud global, comienza a sentar raíces.

Fake flies in urinals to fluorescent frogs: innovation in healthcare

Policy
This year's Congress will focus on 'innovation improving sustainable access: how to boost your reach and impact'.

Addressing stigma in mental health

Members
Excerpts from the 'Presidential New Year Message 2016', by Gabriel Ivbijaro MBE JP, President of the World Federation for Mental Health.

Los miembros de la IAPO participan el primer taller “Pacientes en defensa de su seguridad” en Uganda

Members
Los miembros de IAPO, CHAIN (La Red de Salud Comunitaria e Información) y UAPO (La Alianza de Organizaciones de Pacientes en Uganda) trabajaron con la OMS (La Organización Mundial de Salud) para organizar el primer taller del programa Pacientes en defensa de su seguridad en Uganda en noviembre del 2015.

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