Patients' representatives, academics and health experts spoke on a wide range of topics at the 7th Global Patients' Congress. Please find presentation slides from many of the speakers below.

IAPO Speaker Vicki Pinkney-Atkinson

Please note: whilst the majority of presentations are available, some speakers did not use slides during their presentations and others only gave permission to display slides at the time of the event. If you have any questions about this, please contact us.


Presentations from Day 1 / Day 2Day 3


Day 1

IAPO Congress speaker Joshua Wamboga

Innovation in rare or stigmatized diseases and disorders and treatment - Joshua Wamboga, Uganda Network of AIDS Service Organizations (UNASO)

IAPO Congress speaker Gi-jong An

Korean Patients’ Voices: From Shouting to Acting - Gi-jong An, Korea Alliance of Patients’ Organizations (KAPO)

IAPO Congress speaker Anne Charlet

Patient Panel: Fertile source of inspiration for campaigns - Anne Charlet, LUPUS EUROPE

IAPO Congress speaker Bejon Kumar Misra

Innovative collaborations to increase impact - Bejon Kumar Misra, Consumer Online Foundation

Carolina Cohen, ABRALE/ABRASTA

Alianza Latina: sharing best practices in Latin America - Carolina Cohen, ABRALE/ABRASTA

IAPO Congress speaker Joan Jordan

Innovative Collaborations to Increase Impact European Patients’ Academy: Outline & Status Update - Joan Jordan, EUPATI

IAPO Congress speaker Gertrude Buttigieg

Patients’ Rights in Malta - Gertrude Buttigieg, Malta Health Network

IAPO Congress speaker Flóra Raffai

Empowering Rare Disease Patients - Flóra Raffai, Findacure

IAPO Congress speaker Marco Espíldora H

“Cancer and aging”: Building a regional movement with impact: Latin & South America - Marco Espíldora H., CancerVida

IAPO Congress speaker Katharina Kovacs Burns

Patients Determining Measures In Healthcare: Strategy to Influence Healthcare Policies & Practices - Katharina Kovacs Burns, Best Medicines Coalition, Canada Health Coalition of Alberta Society

IAPO Congress speaker Kerstin Morrison

The European Patient Ambassador Programme (EPAP): A tool for effective patient involvement - Kerstin Morrison, European Lung Foundation (ELF)

IAPO Congress speaker Matthias Wienold

Patient-led Innovations: Community Advisory Boards - Matthias Wienold, European AIDS Treatment Group

IAPO Congress speaker Ofra Balaban

The role of NGO’s: The patient’s voice case study - Ofra Balaban, CHEN Patient Fertility Association

IAPO Congress speaker Penney Cowan

Innovation in Communication Becoming Part of Your Health Care Team - Penney Cowan, American Chronic Pain Association

IAPO Congress speaker Migdalia Denis

Impact of the Pulmonary Hypertension Latin Society - Migdalia Denis, Pulmonary Hypertension Latin Society

IAPO Congress speaker Rubby Chawla

Innovation in rare or stigmatized diseases and disorders and treatment - Rubby Chawla, Indian Patients Society for Primary Immunodeficiency


Day 2

IAPO Congress speaker Nittita Prasopa-Plaizier

Where are we on the journey towards universal health coverage?: Engaging for integrated, people-centred, quality UHC - Nittita Prasopa-Plaizier, Service Delivery and Safety Department, World Health Organization

IAPO Congress speaker Christine Janus

Using Report Cards as an advocacy tool: The Canadian Experience - Christine Janus, International Alliance of Dermatology Patient Organizations

IAPO Congress speaker Antonio Ciaglia

Patient involvement in research: Innovation in the drug development and access pathways - Antonio Ciaglia and Alison Lightbourne, IAPO

IAPO Congress speaker Jane Meijlink

Patient involvement in standardization of terminology and definitions and guidelines - Jane Meijlink, International Painful Bladder Foundation (IPBF)

IAPO Congress speaker Kawaldip Sehmi

World’s First Patient-led Treaty - Kawaldip Sehmi, IAPO

IAPO Congress speaker Lars Ettarp

The road to the WHO psoriasis resolution - Lars Ettarp, International Federation of Psoriasis Associations

IAPO Congress speaker Robert Johnstone

THE UK NHS: 70 years of universal health coverage - Robert Johnstone, IAPO

IAPO Congress speaker Tamás Bereczky

European Patients’ Academy on Therapeutic Innovation - Tamás Bereczky, EUPATI

IAPO Congress speaker Vicki Pinkney-Atkinson

“Silly little skin thing”: 60 year lived experience - Vicki Pinkney-Atkinson, Patient Health Alliance of Nongovernmental Organizations, South Africa

IAPO Congress speaker Dr Ricardo Cabral

Case Study of the Maternal Child Health Network from EuSaúde Project - Dr Ricardo Cabral, European Association for Health Promotion and Literacy



Day 3

IAPO Congress speaker Bruce Eshaya-Chauvin

Health Care in Danger: a Matter of Life and Death - Bruce Eshaya-Chauvin, International Committee of the Red Cross

IAPO Congress speaker Stijntje Dijk

Students Safeguarding Health - Stijntje Dijk, International Federation of Medical Students’ Associations

IAPO Congress speaker Nathalie Bere The role of patients at the European Medicines Agency - Nathalie Bere, European Medicines Agency


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