Patients' representatives, academics and health experts spoke on a wide range of topics at the 7th Global Patients' Congress. Please find presentation slides from many of the speakers below.
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Please note: whilst the majority of presentations are available, some speakers did not use slides during their presentations and others only gave permission to display slides at the time of the event. If you have any questions about this, please contact us.
Day 1
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Innovation in rare or stigmatized diseases and disorders and treatment - Joshua Wamboga, Uganda Network of AIDS Service Organizations (UNASO)
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Korean Patients’ Voices: From Shouting to Acting - Gi-jong An, Korea Alliance of Patients’ Organizations (KAPO)
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Patient Panel: Fertile source of inspiration for campaigns - Anne Charlet, LUPUS EUROPE
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Innovative collaborations to increase impact - Bejon Kumar Misra, Consumer Online Foundation
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Alianza Latina: sharing best practices in Latin America - Carolina Cohen, ABRALE/ABRASTA
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Innovative Collaborations to Increase Impact European Patients’ Academy: Outline & Status Update - Joan Jordan, EUPATI
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Patients’ Rights in Malta - Gertrude Buttigieg, Malta Health Network
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Empowering Rare Disease Patients - Flóra Raffai, Findacure
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“Cancer and aging”: Building a regional movement with impact: Latin & South America - Marco Espíldora H., CancerVida
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Patients Determining Measures In Healthcare: Strategy to Influence Healthcare Policies & Practices - Katharina Kovacs Burns, Best Medicines Coalition, Canada Health Coalition of Alberta Society
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The European Patient Ambassador Programme (EPAP): A tool for effective patient involvement - Kerstin Morrison, European Lung Foundation (ELF)
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Patient-led Innovations: Community Advisory Boards - Matthias Wienold, European AIDS Treatment Group
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The role of NGO’s: The patient’s voice case study - Ofra Balaban, CHEN Patient Fertility Association
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Innovation in Communication Becoming Part of Your Health Care Team - Penney Cowan, American Chronic Pain Association
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Impact of the Pulmonary Hypertension Latin Society - Migdalia Denis, Pulmonary Hypertension Latin Society
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Innovation in rare or stigmatized diseases and disorders and treatment - Rubby Chawla, Indian Patients Society for Primary Immunodeficiency
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Day 2
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Where are we on the journey towards universal health coverage?: Engaging for integrated, people-centred, quality UHC - Nittita Prasopa-Plaizier, Service Delivery and Safety Department, World Health Organization
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Using Report Cards as an advocacy tool: The Canadian Experience - Christine Janus, International Alliance of Dermatology Patient Organizations
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Patient involvement in research: Innovation in the drug development and access pathways - Antonio Ciaglia and Alison Lightbourne, IAPO
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Patient involvement in standardization of terminology and definitions and guidelines - Jane Meijlink, International Painful Bladder Foundation (IPBF)
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World’s First Patient-led Treaty - Kawaldip Sehmi, IAPO
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The road to the WHO psoriasis resolution - Lars Ettarp, International Federation of Psoriasis Associations
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THE UK NHS: 70 years of universal health coverage - Robert Johnstone, IAPO
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European Patients’ Academy on Therapeutic Innovation - Tamás Bereczky, EUPATI
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“Silly little skin thing”: 60 year lived experience - Vicki Pinkney-Atkinson, Patient Health Alliance of Nongovernmental Organizations, South Africa
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Case Study of the Maternal Child Health Network from EuSaúde Project - Dr Ricardo Cabral, European Association for Health Promotion and Literacy
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Day 3
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