News Archive: November 2016

Historic launch of the UN NGO Committee for Rare Diseases at the UN New York

Members
New York witnessed a rare event on 11 November 2016. After decades of hard work, the rare diseases patient-voice final reached the ears of the United Nations and the world. The UN Headquarters on 405 East 42nd Street saw the launch of the NGO Committee for Rare Diseases (NGOCRD) The NGOCRD is a...

A regional NCD Alliance in Africa

Members
Dalilah Kalla, IAPO representative from member Lupus Alert (Mauritius), represented IAPO at two WHO and Civil Society meetings on Non-Communicable Diseases in Mauritius. By Dalilah Kalla, from Lupus Alert The establishment of an African non-State actors’ network and the development of a regional...

UK Supreme Court closes the gap between ‘legal consent’, ‘informed consent’ and the ‘best interest’ of the patients!

Policy
UK Supreme Court (UKSC) judgment in Montgomery v Lanarkshire Health Board has closed the gap between ‘legal consent’, ‘informed consent’ and the ‘best interest’ of the patients. The full judgment, the point of law decided and the rationale for the decision (ratio decidendi) of this important case...