Our business and affairs are supervised and directed by the Governing Board. This Board comprises of elected representatives from our full and associate member organizations.
 

Governing Board Members


Jolanta Bilinska                            


 

Terms of Board Members

Governing Board Members may serve for up to two terms or six years, with one full term being equal to a maximum three years.
 

Our Board structure

Many of our Governing Board are patients themselves or are patient representatives such as a parent or carer. All have living and working relationships with patients through their organizations. Our Board has two face-to-face meetings each year and active engagement through teleconferences throughout the year.