News Archive: September 2017

Rare Diseases in Latin America: Challenges and opportunities for the equitable attention and proposal of Patients Organizations

Resources
IAPO board member Migdalia Denis and IAPO member Angela Chaves explore the issue of rare diseases in Latin America.

IAPO AGM 2017 Notice

Other
IAPO Governing Board nomination 2017 - Form

Real-World Evidence in Medicine Development Course starts October 2nd

Members
This is an interactive online course, which is aimed at anyone interested in knowing more about opportunities and challenges for the use of real-world evidence in medicine development. It is an ideal resource for anyone who wishes to become familiar with the key issues in the areas of real-world...

Living With Chronic Pain - A patient perspective

Resources
What if every single part of your body hurts and you have no explanation? What if it’s hard for doctors to determine your diagnosis? What if there is no relief in sight? Through FindMecure, Thomas Jarvis, a patient with Complex Regional Pain Syndrome, gives us a glimpse of what it is to live with...

Understanding the science of pain management

Resources
Pain is a serious sensory threat that can affect virtually any part of the body in varying degrees. The way people experience pain differs greatly, with some tolerating it more than others. It is important to note that pain can be significantly debilitating and affect the overall quality of life. Dr. James Trapasso , Medical Director, Presbyterian Medical Group, discusses pain management and its benefits and risks.

Policy Briefing #7 - Pain Management

Members
This month’s policy briefing focuses on pain management. IAPO’s Declaration on Patient-Centred Healthcare outlines that, despite representing patients from many different disease backgrounds, the focus must be on addressing the common needs of all patient communities, regardless of their disease area.