How an online patient group proved its value to me
IAPO Governing Board Member Matthias Wienold wrote a blog for the British Medical Journal about online patient groups and the value they bring.
Around the world patient groups in social networks are growing and even becoming of interest to researchers. So, when I got diagnosed with cluster headache (CH) syndrome I gave it a try. CH is not the typical self-help group disorder. It is rare and only occurs in bouts for most patients. When attacked, I don’t want to meet anybody. When the pain goes away, I don’t want to think about it.
So, fair enough, I turned to the internet and went searching...
The article is available at the British Medical Journal's official website.