News Archive: February 2017

Rare Diseases and Birth Defects Registry in developing countries

Members
Contributed by Thong Meow-Keong, Malaysian Rare Disorders Society (IAPO member) Rare diseases particularly birth defects are a major causes of disability in developing countries (1,2). There is lack of data on birth defects from large population-based studies in the Asia-Pacific region (3). The...

PATIENTS’ RIGHTS HAVE NO BORDERS

Members
On 1 March 2017, Active Citizenship Network is going to celebrate the first anniversary of its EU communication campaign on cross-border healthcare. Foreseen by Directive 2011/24/EU – it’s named Patients’ rights have no borders – with a multi stakeholder conference at the EU Parliament. The...

Anti-counterfeit Network Africa Launched

Members
On 15 February 2016, the Anti-counterfeit Network Africa was launched in Uganda to help in intensifying the fight against production & supply of Counterfeit drugs to ensure patient access to quality medicine. According to WHO, Substandard, spurious, falsely labelled, falsified and counterfeit (...

Policy Briefing #1: Patient-Centred Healthcare

Members
IAPO’s 2017 member engagement and empowerment plan will be centred on four main thematic areas: Patient-centred healthcare, Access, Accountability and Transparency, and the Patient Solidarity Day theme (to be decided by our members in the forthcoming months). This policy document kicks off our...

Act globally, think locally. It all leads to a WHO resolution….

Members
Sophie Andersson, Executive Director of the International Federation of Psoriasis Associations (IFPA), returns to the World Health Organization’s 140th Executive Board Session this year where in 2014 IFPA got through a historic resolution recognizing psoriasis as a non-communicable disease and...

What should this year's theme be for Patient Solidarity Day?

Members
Suggest to us what the 2017 Patient Solidarity Day theme should be

IAPO collaborates with iPRI to access epidemiology and statistical support

Partnerships
The International Prevention Research Institute (iPRI) President Professor Peter Boyle signed an important Memorandum of Understanding with our Chair of the Board Jolanta Bilińska to mark the World Cancer Day. The role of patients’ organizations is morphing rapidly from its initial lobbying focus...