News Archive: Partnerships

The role of patient value and patient-centred care in health systems 

Partnerships
Patient-centred care, with its emphasis on patient value, is a widespread health system goal. To examine the progress of the evolution towards more patient-centred health care and draw lesson for the future, The Economist Intelligence Unit conducted a survey and interviews on patient...

Nothing About You Without You

Partnerships
Contributed by Camilla Krogh Lauritzen, Chief Patient Officer, LEO Pharma 28 February is Rare Disease Day. Hardly any surprise to anyone who is committed to changing the status quo for the millions of people affected by one or more of the 7000+ rare diseases. But then again, it may be news for many...

New patient-led roadmap provides blueprint to tackle the burden of asthma

Partnerships
A new roadmap has been published identifying key priority areas that need to be addressed to tackle the burden of asthma. The roadmap, which has come out of the European Asthma Research and Innovation Partnership (EARIP) , suggests that a unified approach to research is urgently needed to address the challenge of asthma in Europe and improve the lives of people living with the condition.

IAPO collaborates with iPRI to access epidemiology and statistical support

Partnerships
The International Prevention Research Institute (iPRI) President Professor Peter Boyle signed an important Memorandum of Understanding with our Chair of the Board Jolanta Bilińska to mark the World Cancer Day. The role of patients’ organizations is morphing rapidly from its initial lobbying focus...

New WHO Designated Technical Officer for IAPO

Partnerships
New Year is a great time for change and growth. Nittita Prasopa-Plaizier, our designated technical officer (DTO) for the WHO-IAPO official relationship, will move on to bigger and better things in 2017. Many of you met Nittita at our Global Patient Congress in April 2016. Nittita was the Programme...

Global patient movement welcomes new United Nations Secretary General

Partnerships
On 1st January 2017, a new era begins at the United Nations. Mr. António Guterres, the former Portuguese prime minister, will become the next UN Secretary General, replacing Ban Ki-moon. http://bit.ly/2hhWEpq Mr. Guterres was the Prime Minister of Portugal from 1995 to 2002 and the UN High...

How an online patient group proved its value to me

Partnerships
IAPO Governing Board Member Matthias Wienold wrote a blog for the British Medical Journal about online patient groups and the value they bring.

WHO renews official relations status with IAPO

Partnerships
We are very pleased to announce that IAPO’s official relations status with the World Health Organization has been renewed.

The law on our side: legal support for IAPO members

Partnerships
IAPO and Advocates for International Development (A4ID), set up by 1,000 London based legal firms to provide pro-bono legal services to international NGOs in their development work, have formed a partnership to improve our members’ access to legal expertise to increase their impact in low and middle-income countries.

A new partnership with Alianza Latina

Partnerships
We are delighted to share that IAPO has recently formalized its partnership with Alianza Latina, through the signing of a Memorandum of Understanding.

IAPO Board Member involved in 'Patients for Patient Safety'

Partnerships
The World Health Organization (WHO) has nominated IAPO Governing Board member Mr. Hussain Jafri as the Vice Chair of the Advisory Group of WHO's Patients for Patient Safety programme ( PFPS ) .

IAPO attends International Conference of Drug Regulatory Authorities

Partnerships
IAPO Governing Board member Eva Maria Ruiz de Castilla attended the 16th International Conference of Drug Regulatory Authorities in Rio de Janeiro, Brazil in August 2014, and a pre-conference on 'Ensuring Quality and Safety of Biosimilars for Patients Worldwide'. Eva Maria spoke during a plenary...

Informing, respecting and caring for cancer patients: a LIVESTRONG symposium

Partnerships
What if we could build a system of patient-centered cancer care with all the innovations we could possibly imagine? Contributed by Rebekkah Schear, Program Manager, the LIVESTRONG Foundation (IAPO member).