Patients need to be involved in decisions about their care and in health policy decision-making. Decisions made at every level ultimately affect patients' lives. 

IAPO member at Congress

A meaningful role

Therefore patients have a moral and ethical right to play a meaningful role in developing healthcare policies. Engaging patients in health policy decision-making helps to ensure that policies reflect patient and caregiver needs, preferences and capabilities, making it an appropriate and cost-effective way to address the needs of the growing number of people with chronic conditions.

There is growing evidence that patient-centred healthcare promotes greater patient responsibility and optimal usage which ultimately leads to improved health outcomes, quality of life and patient satisfaction.

Policy briefing 2017

Patients can be empowered before, during and after participation in a research project.
To do so, it is crucial to keep in mind some crucial points:
  • Patients should be considered not just as sources of data, but as individuals who hold valuable information and opinions that will benefit research
  • Patient input is important in identifying research priorities before a research study, keeping the process patient-friendly during a research study, and ensuring the outcomes are appropriately communicated after a research study
  • Patients should use the resources available to them to become knowledgeable about their opportunities, rights, support, and expertise when taking part in research

Read policy briefing here

Further IAPO resources