News Archive: July 2015

Kidney cancer network reaching out to patients' organizations worldwide

Members
The International Kidney Cancer Coalition is actively looking to reach out and connect with patient organizations who have an interest in kidney cancer.

How to get the message across

Policy
Alison Lightbourne, IAPO Policy Manager, shares on how to get the message across and the importance of communicating clearly.

A landmark case and the campaigning tips that made it happen

Policy
Two charities recently won a landmark case in the UK Supreme Court that will change the health and social welfare laws which affect thousands of children with severe chronic health conditions.

Building high-performing healthcare systems in the 21st century

Policy
Bill and Melinda Gates Foundation ( BMGF ) is currently consulting with health advocates and key civil society organizations on the launching of a new initiative aimed at building high-performing health care systems in the 21st century.

Member wins prize at WHO World Health Assembly

Members
Congratulations to the Thalassaemia International Federation, awarded The Dr LEE Jong-Wook Memorial Prize for Public Health at the World Health Assembly!

Apply to represent IAPO at WHO Regional Committees

Members
As an organization with special consultative status at the World Health Organization (WHO), IAPO is delighted to invite applications from members for support to attend Regional Committee Meetings in autumn 2015.

WHO Regional Committees factsheet

Resources
Read our factsheet on WHO, Regional Committees and how we work with them.

Public consultation on new WHO strategy

Policy
The WHO has released a global strategy on people-centred and integrated health services (PCIHS) and it is now open for public consultation. Dr Edward Kelley, from Service and Delivery at the WHO, has written the invitation below.

60 Seconds with... Matthias Wienold, The European AIDS Treatment Group

Members
Our featured member of the month is Matthias Wienold from the European AIDS Treatment Group. Matthias is joining our Governing Board in August and answered a few questions for us.

How to build a global network

Other
Paloma Tejada , Senior Manager, Rare Diseases International, shares some advice - including top tips, challenges and successes - for creating a global network.

How to change systems: the importance of measurement

Resources
The Bill and Melinda Gates Foundation (BMGF) has launched the Primary Health Care Performance Initiative ( PHCPI ) which seeks to help low- and middle-income countries build high-performing primary healthcare systems through better performance measurement and knowledge-sharing.

World Hepatitis Day coming soon

Events
Worldwide, 400 million people are living with hepatitis B or C and every year 1.4 million people die from viral hepatitis; that’s as many as die from HIV/AIDS and yet the disease remains remarkably neglected. Written by Dylan O'Sullivan, Programme Manager, World Hepatitis Alliance.

Apply for a Congress bursary now!

Events
We are really pleased to announce that the bursary process for the 7th Global Patients Congress , to be held in London, 9-11 April 2016, is now live!

Adding bite to bark: a human rights based approach in healthcare

Policy
IAPO CEO Kawaldip Sehmi explores how using a human rights-based approach (HRBA) can be a powerful factor in achieving patient-centred healthcare as patient advocates can now go beyond their national constitutions, statutory law (Acts of Parliament) and subsidiary legislation to seek help from international law. They can invite global health governance scrutiny on the actions and inactions of their national governments and their health systems.

60 Seconds with... Jolanta Bilińska, Patient Safety Foundation

Members
Each month we will be interviewing an IAPO member in six short questions. They will be featured in our newsletter and the website. Our featured member of the month is Jolanta Bilińska from the Polish Patients Safety Foundation. Jolanta begins as the new IAPO Chair in August and answered a few questions for us.

A new IAPO Chair and Board changes

Other
This August brings a number of significant changes to the IAPO Governing Board. We thank our departing Chair and two Board Members and welcome our new Chair and two other additions to the Board.

60 Seconds with... Penney Cowan, the American Chronic Pain Association

Members
Each month we will be interviewing an IAPO member in six short questions. They will be featured in our newsletter and the website. Our featured member of the month is Penney Cowan from American Chronic Pain Association ​. Penney answered a few questions for us.