News Archive: Events

IAPO and the social participation agenda

Events
WHA77 Side Event On the sidelines of the 77th World Health Assembly (WHA77), which took place from 27 May to 1 June 2024 in Geneva, the International Alliance of Patients’ Organizations (IAPO) and The Synergist jointly hosted the side event “Leveraging patient organizations as key partners in the...

IAPO present at the 6th Global Ministerial Summit on Patient Safety in Chile 

Events
IAPO was invited to speak at one of the workshop sessions of the 6th Global Ministerial Summit on Patient Safety held in April 2024 in Santiago, Chile. Titled "Synergies and Partnerships to Improve Patient Safety: How to Support the Implementation of the Global Patient Safety Action Plan and Its...

PCC Alliance holds a workshop for cancer patient organisations in Morocco

Events
IAPO, via the Personalised Cancer Care Alliance (PCC Alliance) , hosted a ground-breaking workshop aimed at enhancing the capacity of cancer patient organisations in Morocco. Held in Marrakech on 28th January, the workshop brought together 18 patient advocates representing different types of cancer...

IAPO and The Synergist's Side Event at the 77th World Health Assembly

Events
On the sidelines of the 77th World Health Assembly (WHA77) taking place from 27 May to 1 June 2024 in Geneva (Switzerland), the International Alliance of Patients’ Organizations (IAPO) – a Non-State Actor in Official Relations with the WHO – and The Synergist – a non-profit focused on collaborative...

IAPO Policy Report Launch to improve Breast Cancer Care in the Middle East and Africa

Events
We are pleased to invite you to the Policy Report Online Launch "Improving Breast Cancer in the Middle East and Africa: Patient Engagement and Policy Recommendations". Scheduled for Tuesday, 7 May 2024, from 12:00 to 13:15 GMT+1 , the event will convene patients, patient organizations, policymakers...

Call for speakers and moderators -1st African Patients Congress

Events
The 1st virtual African Patients Congress (APC 2020) will bring together our regional membership with a variety of high-level healthcare stakeholders to share their vision and experience as to how patients can engage with and co-create in building back better the African health system post-pandemic...

Rare Disease Day 2019: bridging health and social care

Events
On 28 February 2019, people living with or affected by a rare disease, patient organizations, politicians, carers, medical professionals, researchers and industry will come together to celebrate the twelfth annual Rare Disease Day. A patient-led campaign, organizations in over 70 countries and...

Speaker biographies for Congress 2018

Events
Speaker biographies for the 8th Global Patients Congress are now available.

Show your face to eliminate hepatitis

Events
This year's road map for the fight against viral hepatitis continues to be led by the World Hepatitis Alliance as it aims to build on the momentum to meet the goal of eliminating hepatitis following the adoption of WHO’s global hepatitis elimination strategy in 2016 .

140th Session of the WHO Executive Board Jan 2017

Events
The World Health Organization’s Executive Board (WHO EB) met for its 140th Session during the week commencing 23rd January 2017. Sophie Andersson, the Executive Director of our member the International Federation of Psoriasis Associations (IFPA), attended this Session. She shared her experience on...

Patient movement calls for universal health coverage to become a reality for all

Events
On Saturday 3 December, a global patient movement will rally together on Patient Solidarity Day in a united call for patient-centred universal health coverage for all by 2030. Around 200 leading patient organizations across the world are expected to join forces on Saturday to hold governments and...

‘NOhep’: eliminando la hepatitis viral antes del 2030

Events
En el Día Mundial de la Hepatitis, 28 julio 2016, la Alianza Mundial Contra la Hepatitis junto con muchas otras organizaciones de la sociedad civil lanzará un movimiento global con el fin de eliminar la hepatitis viral antes del 2030. ​

Patients' guidelines for Ramadan 2016

Events
Once again the auspicious ninth lunar month in the Islamic calendar is here! It's an exciting time for many of our Muslim patient members and their families as they plan to fulfil their obligations to fast for a month starting around 7th June 2016.

IAPO Chair’s thoughts on Global Patients Congress 2016

Events
Thank you to everyone who joined us for the 7th Global Patients Congress from 9-11 April. The event was more member-led than ever before and represented another step forward for the global patient movement.

Ayudando a los pacientes a llevar la carga de la EII en América Latina

Events
#PerspectivasEII : Una campaña de concientización organizada por La Fundación Mas Vida de Crohn & Colitis Ulcerosa (Argentina) para el Día Mundial de la Enfermedad Inflamatoria Intestinal , el 19 de mayo de 2016.

Iluminando monumentos para cinco millones de personas

Events
Alrededor del mundo, cinco millones de personas viven con la enfermedad de Crohn y colitis ulcerosa, condiciones conocidas como enfermedades inflamatorias del intestino (EII).

Congress 2016: a step forward for the global patient movement

Events
Thank you to everyone who joined us for the 7th Global Patients Congress from 9-11 April.

Could you join the Global Heroes team?

Events
Applications are open for the 2016 Global Heroes team. The team honours runners from around the world who benefit from medical technology, with no restriction on manufacturer.

Global Patients Congress 2016 a big success!

Events
Congress is our flagship event where we bring together our global membership with a variety of high level healthcare stakeholders to discuss important issues for patients worldwide.

Photos from Congress now available

Events
Photos from Congress are now available!

Speaker presentations from Congress

Events
Speaker presentations from the 7th Global Patients Congress are now available.

Global Patients Congress happening now!

Events
150 patients’ advocates from 48 countries are meeting in London to discuss how innovation can help achieve universal, patient-centred and sustainable access to healthcare around the world. Follow the action live on Twitter , Facebook and #GPC2016 .

Less than a month to Congress

Events
With less than a month to go until Congress, the IAPO office is a hive of activity! Registrations have doubled in the last month and we can't wait to see you there. The event promises to be an exciting time. You'll meet with patients' representatives, health professionals and experts from across the globe. Don't miss out!

One month to go: your to-do list for Congress

Events
There is one month to go until the 7th Global Patients Congress begins!

Speaker biographies for Congress

Events
Speaker biographies for the 7th Global Patients Congress are now available.

Las Engermedades Rares: Un desafio a los sistemas de salud Latinamericanos

Events
Las Enfermedades Raras (ER) son en su mayoría enfermedades graves, crónicas y progresivas que producen una alta carga familiar y social y plantean retos a los sistemas de salud y protección social muy distintos a los de las enfermedades comunes.

Global Patients Congress keynote speakers

Events
The 7th Global Patients Congress will feature a wide range of excellent speakers.

Less than two months until Congress

Events
There are two months to go until the 7th Global Patients Congress ! We know that our members are working hard and are incredibly busy but please don’t forget to register now if you intend to join us. We are pulling together final preparations and do not want you to miss out.

Ayudanos a evaluar el Día de Solidaridad con el Paciente 2015

Events
Por favor ayúdenos a examinar el Día de Solidaridad con el Paciente 2015.

Resources to help secure funding to attend Congress

Events
We have developed a resources pack to help you apply for funding to attend Congress.

Choose your workshops for Congress

Events
Welcome to the latest Global Patients Congress newsletter from a cold IAPO office! Momentum around the event is building and the programme is shaping up to be the best ever.

'We can. I can.' this World Cancer Day

Events
World Cancer Day unites the world’s population in the fight against cancer. It aims to save millions of preventable deaths each year by raising awareness and educating about the disease, pressing governments and individuals across the world to take action.

El Día Mundial de las Enfermedades Raras 2016

Events
El 29 de febrero 2016, las personas viviendo con o afectados por las enfermedades raras, organizaciones de pacientes, políticos, cuidadores, profesionales médicos, investigadores e industria se juntarán para celebrar el noveno Día Mundial de las Enfermedades raras.

Conmemoración del Día Mundial de las Enfermedades Poco Frecuentes

Events
Technological advances in scientific research have placed us in a universe of knowledge that today allows us to speak of more than 8,000 rare diseases (EPOF) that affect 8% of the world population, as determined by WHO. However, governments are not following at the same pace, causing a gap between knowledge of treatment and access to treatment.

Para un acceso seguro a los medicamentos biológicos y biosimilares en América Latina

Events
En diciembre 2015, 34 grupos de pacientes de toda América Latina se reunieron en Buenos Aires y participaron activamente a la Cumbre latinoamericana de grupos de pacientes sobre los bioterapeuticos, co-organizada por IAPO y GAfPA ( Global Alliance for Patient A ccess) y patrocinada por AbbVie .

New speakers announced for Congress

Events
We are really pleased to announce two new speakers for the 7th Global Patients Congress, from 9-11 April 2016.

¿Participó al Día de la Solidaridad con el Paciente?

Events
Más de 100 organizaciones de 31 países ayudaron a hacer del día un gran éxito.

Apply to attend or speak at Congress 2016

Events
Apply to attend or speak at the 7th Global Patients Congress in 2016.​

Open Call for Congress 2016 presentations

Events
We are delighted to announce that the open call process for presenters is now live for the 7th Global Patients Congress, to be held in London, April 2016. Please apply below.

¡Anunciamos el tema del Día de la Solidaridad con el Paciente 2015!

Events
Agradecemos a todos los miembros de IAPO que han votado por el tema del Día de la Solidaridad con el Paciente 2015. ¡Hemos tenido muchas respuestas y estamos muy entusiasmados de lanzar un evento centrado en nuestros miembros, impulsado por nuestros miembros!

Liderando, avanzando, empoderando grupos de pacientes en América Latina

Events
En agosto de 2015, en la Ciudad de Panamá, IAPO organizó su quinto Encuentro Regional, moderó la tercera Cumbre de Grupos de Pacientes de América Latina patrocinada por Novartis y participó en al 7º Encuentro de LATINAPSO.

My IAPO experience: a day at WHO Regional Committee for Europe

Events
Written by Ziede Mesonyte, IAPO Operations Coordinator, who attended the WHO Regional Committee meeting in Vilnius, Lithuania, from 14 – 17 September 2015.

World Psoriasis Day: giving a global voice to more than 125 million people with psoriasis

Events
Established in 2004, World Psoriasis Day is a health awareness day which falls annually on 29 October

7th Global Patients Congress: How to boost your reach and impact

Events
We are delighted to announce that the 7th Global Patients Congress ( Selsdon Park Hotel, London, 9-11 April 2016) will focus on how to boost the reach and impact of patients’ organizations.

World Alzheimer’s Month this September

Events
Every three seconds, someone in the world develops dementia. Today, more than 46 million people are living with the disease. This number is set to almost double every 20 years, making dementia one of the most significant health crises of the 21st century.

The beginning of a busy WHO season

Events
Rose, IAPO’s Senior Membership Officer, blogs on preparing for the WHO Regional Committee meetings, what members can expect from attending, and how we work to include you in advocacy at WHO.

Upcoming IAPO Regional Meeting in Latin America

Events
Seminario de la IAPO: “Innovación, regulación y asistencia sanitaria centrada en el paciente” , 24 de Agosto 2015, Ciudad Panamá, Panamá​

i Guarda la fecha !

Events
Seminario de la IAPO: “Innovación, regulación y asistencia sanitaria centrada en el paciente”, 24 de Agosto 2015, Ciudad Panamá, Panamá​ Por favor guarda la fecha para nuestro seminario de actores múltiples en América Latina que se titula “Innovación, regulación y asistencia sanitaria centrada en el paciente”.​

World Hepatitis Day coming soon

Events
Worldwide, 400 million people are living with hepatitis B or C and every year 1.4 million people die from viral hepatitis; that’s as many as die from HIV/AIDS and yet the disease remains remarkably neglected. Written by Dylan O'Sullivan, Programme Manager, World Hepatitis Alliance.

Apply for a Congress bursary now!

Events
We are really pleased to announce that the bursary process for the 7th Global Patients Congress , to be held in London, 9-11 April 2016, is now live!

The pressing issue of biosimilar medicines

Events
We will be building on our existing biosimilar work by taking part in the BIO International Convention in Philadelphia from 15-18 June.

Unlocking access to the best health technology

Events
Despite the needs of patients increasing around the world, healthcare continues to be inaccessible and too expensive for many people. New technology is beginning to change this but must be evaluated properly.

The importance of access this World MS Day

Events
Sophie Paterson, Communications Manager from MSIF, explores why access for people with MS is so important this World MS Day on 27 May 2015.

Bursaries to attend 7th Global Patients Congress

Events
The bursary process to attend the 7th Global Patients Congress (2016) opens soon.

Race for runners assisted with medical technology

Events
Are you a runner who has benefited from medical technology? Applications are open to take part in Medtronic's annual race in Minneapolis, USA, with flights, accommodation and more included.

Call to help shape 7th Global Patients Congress 2016

Events
Call for applications: join the Advisory Committee for the 7th Global Patients Congress in 2016.

El día de las enfermedades raras 2015: Día a día, mano a mano

Events
El día de las enfermedades raras se llevó a cabo el 28 de Febrero 2015. Los pacientes y las organizaciones de pacientes de todo el mundo se unieron para crear conciencia sobre las enfermedades raras.

Celebrating success of ethical collaboration framework

Events
The first anniversary of the Consensus Framework for Ethical Collaboration, between patients’ organizations, healthcare professionals and the pharmaceutical industry, was marked on the fringes of the 135th World Health Organization Executive Board meeting in Geneva, on 26 January 2015.

Patient Solidarity Day 2014 a resounding success

Events
El 6 de diciembre, las asociaciones de pacientes de todas partes del mundo, de Polonia a Pakistán, de Nigeria a Chile, declararon su solidaridad y exigieron la asistencia sanitaria centrada en el paciente para todos, bajo el lema ‘Una voz. Unida. Universal’.

Calls for universal health coverage at WHO meetings in 2014

Events
Los representantes de IAPO expresaron la voz de los pacientes en cuatro Reuniones de los Comités Regionales de la OMS en 2014.

Sharing the patient voice on a global scale

Events
IAPO will attend and make interventions on behalf of patients at the World Health Organization’s Executive Board meeting in Geneva, Switzerland in January 2015.

Patient Solidarity Day a big success!

Events
Patient Solidarity Day 2014 was a big success, with hundreds of people taking part all around the world. See our story of the day!

Does a healthy breakfast decrease the risk of diabetes?

Events
IAPO Chair Elect Jolanta Bilinska recently represented IAPO at World Diabetes Day 2014 . She shared her experiences with us.

Reflections from the WHO EMRO meeting

Events
IAPO Governing Board member Hussain Jafri attended the WHO Regional Committee meeting for the Eastern Mediterranean region in Tunis, Tunisia from 19 to 22 October 2014. He shared a few thoughts with us.

Patient Solidarity Day has nearly arrived!

Events
IAPO, together with more than 50 patients’ organizations and hundreds of patients from across the world, are uniting to make patient-centred healthcare a reality this Saturday.

IAPO chair speaks on the crucial role of patients

Events
KP Tsang, IAPO Chair, recently attended and spoke at the Fourth International Hospital Federation (IHF) Hospital and Healthcare Leadership Summit, held in Seoul, South Korea on 13 November 2014.

Save the date! Patient Solidarity Day

Events
Agenda la fecha: ¡6 de Diciembre de 2014! Un cuidado de la salud de alta calidad, equitativo y asequible es sólo un sueño para muchas personas alrededor del mundo. Esto necesita ser cambiado. Todos en algún momento de nuestras vidas hemos sido pacientes o hemos cuidado de uno. Por tal motivo es...

IAPO Latin America Meeting report available

Events
In August 2014, we held our fourth regional meeting in Latin America to coincide with the 16th International Conference of Drug Regulatory Authorities in Rio de Janeiro, Brazil. The meeting report is now available.