News Archive: Events

The 1st virtual African Patients Congress (APC 2020) will bring together our regional membership with a variety of high-level healthcare stakeholders to share their vision and experience as to how patients can engage with and co-create in building back better the African health system post-pandemic...
On 28 February 2019, people living with or affected by a rare disease, patient organizations, politicians, carers, medical professionals, researchers and industry will come together to celebrate the twelfth annual Rare Disease Day. A patient-led campaign, organizations in over 70 countries and...
Speaker biographies for the 8th Global Patients Congress are now available.
This year's road map for the fight against viral hepatitis continues to be led by the World Hepatitis Alliance as it aims to build on the momentum to meet the goal of eliminating hepatitis following the adoption of WHO’s global hepatitis elimination strategy in 2016 .
The World Health Organization’s Executive Board (WHO EB) met for its 140 th Session during the week commencing 23 rd January 2017. Sophie Andersson, the Executive Director of our member the International Federation of Psoriasis Associations (IFPA), attended this Session. She shared her...
On Saturday 3 December, a global patient movement will rally together on Patient Solidarity Day in a united call for patient-centred universal health coverage for all by 2030. Around 200 leading patient organizations across the world are expected to join forces on Saturday to hold governments and...
En el Día Mundial de la Hepatitis, 28 julio 2016, la Alianza Mundial Contra la Hepatitis junto con muchas otras organizaciones de la sociedad civil lanzará un movimiento global con el fin de eliminar la hepatitis viral antes del 2030. ​
Once again the auspicious ninth lunar month in the Islamic calendar is here! It's an exciting time for many of our Muslim patient members and their families as they plan to fulfil their obligations to fast for a month starting around 7th June 2016.
Thank you to everyone who joined us for the 7th Global Patients Congress from 9-11 April. The event was more member-led than ever before and represented another step forward for the global patient movement.
#PerspectivasEII : Una campaña de concientización organizada por La Fundación Mas Vida de Crohn & Colitis Ulcerosa (Argentina) para el Día Mundial de la Enfermedad Inflamatoria Intestinal , el 19 de mayo de 2016.
Alrededor del mundo, cinco millones de personas viven con la enfermedad de Crohn y colitis ulcerosa, condiciones conocidas como enfermedades inflamatorias del intestino (EII).
Applications are open for the 2016 Global Heroes team. The team honours runners from around the world who benefit from medical technology, with no restriction on manufacturer.
Congress is our flagship event where we bring together our global membership with a variety of high level healthcare stakeholders to discuss important issues for patients worldwide.
Speaker presentations from the 7th Global Patients Congress are now available.
150 patients’ advocates from 48 countries are meeting in London to discuss how innovation can help achieve universal, patient-centred and sustainable access to healthcare around the world. Follow the action live on Twitter , Facebook and #GPC2016 ...
With less than a month to go until Congress, the IAPO office is a hive of activity! Registrations have doubled in the last month and we can't wait to see you there. The event promises to be an exciting time. You'll meet with patients' representatives, health professionals and experts from across the globe. Don't miss out!
There is one month to go until the 7th Global Patients Congress begins!
Speaker biographies for the 7th Global Patients Congress are now available.
Las Enfermedades Raras (ER) son en su mayoría enfermedades graves, crónicas y progresivas que producen una alta carga familiar y social y plantean retos a los sistemas de salud y protección social muy distintos a los de las enfermedades comunes.
The 7th Global Patients Congress will feature a wide range of excellent speakers.
There are two months to go until the 7th Global Patients Congress ! We know that our members are working hard and are incredibly busy but please don’t forget to register now if you intend to join us. We are pulling together final preparations and do not want you to miss out.
We have developed a resources pack to help you apply for funding to attend Congress.
Welcome to the latest Global Patients Congress newsletter from a cold IAPO office! Momentum around the event is building and the programme is shaping up to be the best ever.
World Cancer Day unites the world’s population in the fight against cancer. It aims to save millions of preventable deaths each year by raising awareness and educating about the disease, pressing governments and individuals across the world to take action.
El 29 de febrero 2016, las personas viviendo con o afectados por las enfermedades raras, organizaciones de pacientes, políticos, cuidadores, profesionales médicos, investigadores e industria se juntarán para celebrar el noveno Día Mundial de las Enfermedades raras.
Technological advances in scientific research have placed us in a universe of knowledge that today allows us to speak of more than 8,000 rare diseases (EPOF) that affect 8% of the world population, as determined by WHO. However, governments are not following at the same pace, causing a gap between knowledge of treatment and access to treatment.
En diciembre 2015, 34 grupos de pacientes de toda América Latina se reunieron en Buenos Aires y participaron activamente a la Cumbre latinoamericana de grupos de pacientes sobre los bioterapeuticos, co-organizada por IAPO y GAfPA ( Global Alliance for Patient A ccess) y patrocinada por AbbVie .
We are really pleased to announce two new speakers for the 7th Global Patients Congress, from 9-11 April 2016.
Apply to attend or speak at the 7th Global Patients Congress in 2016.​
We are delighted to announce that the open call process for presenters is now live for the 7th Global Patients Congress, to be held in London, April 2016. Please apply below.
Agradecemos a todos los miembros de IAPO que han votado por el tema del Día de la Solidaridad con el Paciente 2015. ¡Hemos tenido muchas respuestas y estamos muy entusiasmados de lanzar un evento centrado en nuestros miembros, impulsado por nuestros miembros!
En agosto de 2015, en la Ciudad de Panamá, IAPO organizó su quinto Encuentro Regional, moderó la tercera Cumbre de Grupos de Pacientes de América Latina patrocinada por Novartis y participó en al 7º Encuentro de LATINAPSO.
Written by Ziede Mesonyte, IAPO Operations Coordinator, who attended the WHO Regional Committee meeting in Vilnius, Lithuania, from 14 – 17 September 2015.
We are delighted to announce that the 7th Global Patients Congress ( Selsdon Park Hotel, London, 9-11 April 2016) will focus on how to boost the reach and impact of patients’ organizations.
Every three seconds, someone in the world develops dementia. Today, more than 46 million people are living with the disease. This number is set to almost double every 20 years, making dementia one of the most significant health crises of the 21st century.
Rose, IAPO’s Senior Membership Officer, blogs on preparing for the WHO Regional Committee meetings, what members can expect from attending, and how we work to include you in advocacy at WHO.
Seminario de la IAPO: “Innovación, regulación y asistencia sanitaria centrada en el paciente” , 24 de Agosto 2015, Ciudad Panamá, Panamá​
Seminario de la IAPO: “Innovación, regulación y asistencia sanitaria centrada en el paciente”, 24 de Agosto 2015, Ciudad Panamá, Panamá​ Por favor guarda la fecha para nuestro seminario de actores múltiples en América Latina que se titula “Innovación, regulación y asistencia sanitaria centrada en el paciente”.​
Worldwide, 400 million people are living with hepatitis B or C and every year 1.4 million people die from viral hepatitis; that’s as many as die from HIV/AIDS and yet the disease remains remarkably neglected. Written by Dylan O'Sullivan, Programme Manager, World Hepatitis Alliance.
We are really pleased to announce that the bursary process for the 7th Global Patients Congress , to be held in London, 9-11 April 2016, is now live!
We will be building on our existing biosimilar work by taking part in the BIO International Convention in Philadelphia from 15-18 June.
Despite the needs of patients increasing around the world, healthcare continues to be inaccessible and too expensive for many people. New technology is beginning to change this but must be evaluated properly.
Sophie Paterson, Communications Manager from MSIF, explores why access for people with MS is so important this World MS Day on 27 May 2015.
The bursary process to attend the 7th Global Patients Congress (2016) opens soon.
Are you a runner who has benefited from medical technology? Applications are open to take part in Medtronic's annual race in Minneapolis, USA, with flights, accommodation and more included.
Call for applications: join the Advisory Committee for the 7th Global Patients Congress in 2016.
El día de las enfermedades raras se llevó a cabo el 28 de Febrero 2015. Los pacientes y las organizaciones de pacientes de todo el mundo se unieron para crear conciencia sobre las enfermedades raras.
The first anniversary of the Consensus Framework for Ethical Collaboration, between patients’ organizations, healthcare professionals and the pharmaceutical industry, was marked on the fringes of the 135th World Health Organization Executive Board meeting in Geneva, on 26 January 2015.
El 6 de diciembre, las asociaciones de pacientes de todas partes del mundo, de Polonia a Pakistán, de Nigeria a Chile, declararon su solidaridad y exigieron la asistencia sanitaria centrada en el paciente para todos, bajo el lema ‘Una voz. Unida. Universal’.
Los representantes de IAPO expresaron la voz de los pacientes en cuatro Reuniones de los Comités Regionales de la OMS en 2014.
IAPO will attend and make interventions on behalf of patients at the World Health Organization’s Executive Board meeting in Geneva, Switzerland in January 2015.
Patient Solidarity Day 2014 was a big success, with hundreds of people taking part all around the world. See our story of the day!
IAPO Chair Elect Jolanta Bilinska recently represented IAPO at World Diabetes Day 2014 . She shared her experiences with us.
IAPO Governing Board member Hussain Jafri attended the WHO Regional Committee meeting for the Eastern Mediterranean region in Tunis, Tunisia from 19 to 22 October 2014. He shared a few thoughts with us.
IAPO, together with more than 50 patients’ organizations and hundreds of patients from across the world, are uniting to make patient-centred healthcare a reality this Saturday.
KP Tsang, IAPO Chair, recently attended and spoke at the Fourth International Hospital Federation (IHF) Hospital and Healthcare Leadership Summit, held in Seoul, South Korea on 13 November 2014.
Agenda la fecha: ¡6 de Diciembre de 2014! Un cuidado de la salud de alta calidad, equitativo y asequible es sólo un sueño para muchas personas alrededor del mundo. Esto necesita ser cambiado. Todos en algún momento de nuestras vidas hemos sido pacientes o hemos cuidado de...
In August 2014, we held our fourth regional meeting in Latin America to coincide with the 16th International Conference of Drug Regulatory Authorities in Rio de Janeiro, Brazil. The meeting report is now available.