News Archive: Events

IAPO and the social participation agenda

Events
WHA77 Side Event On the sidelines of the 77th World Health Assembly (WHA77), which took place from 27 May to 1 June 2024 in Geneva, the International Alliance of Patients’ Organizations (IAPO) and The Synergist jointly hosted the side event “Leveraging patient organizations as key partners in the...

IAPO present at the 6th Global Ministerial Summit on Patient Safety in Chile 

Events
IAPO was invited to speak at one of the workshop sessions of the 6th Global Ministerial Summit on Patient Safety held in April 2024 in Santiago, Chile. Titled "Synergies and Partnerships to Improve Patient Safety: How to Support the Implementation of the Global Patient Safety Action Plan and Its...

PCC Alliance holds a workshop for cancer patient organisations in Morocco

Events
IAPO, via the Personalised Cancer Care Alliance (PCC Alliance) , hosted a ground-breaking workshop aimed at enhancing the capacity of cancer patient organisations in Morocco. Held in Marrakech on 28th January, the workshop brought together 18 patient advocates representing different types of cancer...

IAPO and The Synergist's Side Event at the 77th World Health Assembly

Events
On the sidelines of the 77th World Health Assembly (WHA77) taking place from 27 May to 1 June 2024 in Geneva (Switzerland), the International Alliance of Patients’ Organizations (IAPO) – a Non-State Actor in Official Relations with the WHO – and The Synergist – a non-profit focused on collaborative...

IAPO Policy Report Launch to improve Breast Cancer Care in the Middle East and Africa

Events
We are pleased to invite you to the Policy Report Online Launch "Improving Breast Cancer in the Middle East and Africa: Patient Engagement and Policy Recommendations". Scheduled for Tuesday, 7 May 2024, from 12:00 to 13:15 GMT+1 , the event will convene patients, patient organizations, policymakers...

Call for speakers and moderators -1st African Patients Congress

Events
The 1st virtual African Patients Congress (APC 2020) will bring together our regional membership with a variety of high-level healthcare stakeholders to share their vision and experience as to how patients can engage with and co-create in building back better the African health system post-pandemic...

Rare Disease Day 2019: bridging health and social care

Events
On 28 February 2019, people living with or affected by a rare disease, patient organizations, politicians, carers, medical professionals, researchers and industry will come together to celebrate the twelfth annual Rare Disease Day. A patient-led campaign, organizations in over 70 countries and...

Speaker biographies for Congress 2018

Events
Speaker biographies for the 8th Global Patients Congress are now available.

Show your face to eliminate hepatitis

Events
This year's road map for the fight against viral hepatitis continues to be led by the World Hepatitis Alliance as it aims to build on the momentum to meet the goal of eliminating hepatitis following the adoption of WHO’s global hepatitis elimination strategy in 2016 .

140th Session of the WHO Executive Board Jan 2017

Events
The World Health Organization’s Executive Board (WHO EB) met for its 140th Session during the week commencing 23rd January 2017. Sophie Andersson, the Executive Director of our member the International Federation of Psoriasis Associations (IFPA), attended this Session. She shared her experience on...

Patient movement calls for universal health coverage to become a reality for all

Events
On Saturday 3 December, a global patient movement will rally together on Patient Solidarity Day in a united call for patient-centred universal health coverage for all by 2030. Around 200 leading patient organizations across the world are expected to join forces on Saturday to hold governments and...

‘NOhep’: Eliminating viral hepatitis by 2030

Events
On World Hepatitis Day, 28 July 2016, the World Hepatitis Alliance, together with a large number of civil society organizations, will launch a global movement to eliminate viral hepatitis by 2030.

Patients' guidelines for Ramadan 2016

Events
Once again the auspicious ninth lunar month in the Islamic calendar is here! It's an exciting time for many of our Muslim patient members and their families as they plan to fulfil their obligations to fast for a month starting around 7th June 2016.

IAPO Chair’s thoughts on Global Patients Congress 2016

Events
Thank you to everyone who joined us for the 7th Global Patients Congress from 9-11 April. The event was more member-led than ever before and represented another step forward for the global patient movement.

Helping patients carry the burden of IBD in Latin America

Events
World IBD Day is being held on 19 May 2016.

Lighting up landmarks for five million people

Events
Worldwide, five million people live with Crohn’s disease and ulcerative colitis, conditions known as inflammatory bowel diseases (IBD).

Congress 2016: a step forward for the global patient movement

Events
Thank you to everyone who joined us for the 7th Global Patients Congress from 9-11 April.

Could you join the Global Heroes team?

Events
Applications are open for the 2016 Global Heroes team. The team honours runners from around the world who benefit from medical technology, with no restriction on manufacturer.

Global Patients Congress 2016 a big success!

Events
Congress is our flagship event where we bring together our global membership with a variety of high level healthcare stakeholders to discuss important issues for patients worldwide.

Photos from Congress now available

Events
Photos from Congress are now available!

Speaker presentations from Congress

Events
Speaker presentations from the 7th Global Patients Congress are now available.

Global Patients Congress happening now!

Events
150 patients’ advocates from 48 countries are meeting in London to discuss how innovation can help achieve universal, patient-centred and sustainable access to healthcare around the world. Follow the action live on Twitter , Facebook and #GPC2016 .

Less than a month to Congress

Events
With less than a month to go until Congress, the IAPO office is a hive of activity! Registrations have doubled in the last month and we can't wait to see you there. The event promises to be an exciting time. You'll meet with patients' representatives, health professionals and experts from across the globe. Don't miss out!

One month to go: your to-do list for Congress

Events
There is one month to go until the 7th Global Patients Congress begins!

Speaker biographies for Congress

Events
Speaker biographies for the 7th Global Patients Congress are now available.

(ESP only) Las Engermedades Rares: Un desafio a los sistemas de salud Latinamericanos

Events
(ESP only) Las Enfermedades Raras (ER) son en su mayoría enfermedades graves, crónicas y progresivas que producen una alta carga familiar y social y plantean retos a los sistemas de salud y protección social muy distintos a los de las enfermedades comunes.

Global Patients Congress keynote speakers

Events
The 7th Global Patients Congress will feature a wide range of excellent speakers.

Less than two months until Congress

Events
There are two months to go until the 7th Global Patients Congress ! We know that our members are working hard and are incredibly busy but please don’t forget to register now if you intend to join us. We are pulling together final preparations and do not want you to miss out.

Help us evaluate Patient Solidarity Day 2015

Events
Please help us evaluate Patient Solidarity Day 2015. Whether you hosted an event, shared via social media or chose not to take part last year, we want to hear from you.

Resources to help secure funding to attend Congress

Events
We have developed a resources pack to help you apply for funding to attend Congress.

Choose your workshops for Congress

Events
Welcome to the latest Global Patients Congress newsletter from a cold IAPO office! Momentum around the event is building and the programme is shaping up to be the best ever.

'We can. I can.' this World Cancer Day

Events
World Cancer Day unites the world’s population in the fight against cancer. It aims to save millions of preventable deaths each year by raising awareness and educating about the disease, pressing governments and individuals across the world to take action.

Rare Disease Day 2016: making the voice of rare diseases heard

Events
On 29 February 2016, people living with or affected by a rare disease, patient organizations, politicians, carers, medical professionals, researchers and industry will come together to celebrate the ninth annual Rare Disease Day.

Rare diseases in Latin America

Events
Technological advances in scientific research have placed us in a universe of knowledge that today allows us to speak of more than 8,000 rare diseases (EPOF) that affect 8% of the world population, as determined by WHO. However, governments are not following at the same pace, causing a gap between knowledge of treatment and access to treatment.

Patient safety and the power of telling stories

Events
By Brian Kennedy, Executive Director of the Global Alliance for Patient A ccess. In December I had the pleasure of participating in the Latin American Patient Summit on Biotherapeutics, where I offered the assembled advocates some unexpected advice: tell stories.

New speakers announced for Congress

Events
We are really pleased to announce two new speakers for the 7th Global Patients Congress, from 9-11 April 2016.

Did you take part in Patient Solidarity Day?

Events
Over 100 organizations from 31 countries helped make the Day a great success.

Apply to attend or speak at Congress 2016

Events
Apply to attend or speak at the 7th Global Patients Congress in 2016.​

Open Call for Congress 2016 presentations

Events
We are delighted to announce that the open call process for presenters is now live for the 7th Global Patients Congress, to be held in London, April 2016. Please apply below.

Patient Solidarity Day 2015 theme announced

Events
Thank you to every IAPO member who voted on the theme for Patient Solidarity Day 2015. We had many responses and are excited to launch a truly member-centred, member-driven event – chosen by you!

Leading, advancing, empowering patient groups in Latin America

Events
In August 2015, in Panama City, we held our fifth IAPO Latin American regional meeting, moderated the third Latin American Summit of Patients’ Organizations sponsored by Novartis and participated in the 7th Latinapso meeting.

My IAPO experience: a day at WHO Regional Committee for Europe

Events
Written by Ziede Mesonyte, IAPO Operations Coordinator, who attended the WHO Regional Committee meeting in Vilnius, Lithuania, from 14 – 17 September 2015.

World Psoriasis Day: giving a global voice to more than 125 million people with psoriasis

Events
Established in 2004, World Psoriasis Day is a health awareness day which falls annually on 29 October

7th Global Patients Congress: How to boost your reach and impact

Events
We are delighted to announce that the 7th Global Patients Congress ( Selsdon Park Hotel, London, 9-11 April 2016) will focus on how to boost the reach and impact of patients’ organizations.

World Alzheimer’s Month this September

Events
Every three seconds, someone in the world develops dementia. Today, more than 46 million people are living with the disease. This number is set to almost double every 20 years, making dementia one of the most significant health crises of the 21st century.

The beginning of a busy WHO season

Events
Rose, IAPO’s Senior Membership Officer, blogs on preparing for the WHO Regional Committee meetings, what members can expect from attending, and how we work to include you in advocacy at WHO.

IAPO Regional Meeting in Latin America

Events
IAPO will be hosting a Regional Meeting for Latin American Members, in Panama, on 24 and 25 August.

Save the date! LA meeting 24 and 25 August 2015

Events
IAPO Seminar: Innovation, regulation and patient-centred healthcare – 24 August 2015, from 09:00 to 12:30, Panama City, Panama Please save the date for our multi-stakeholder seminar in Latin America entitled, ‘Innovation, regulation and patient-centred healthcare.'

World Hepatitis Day coming soon

Events
Worldwide, 400 million people are living with hepatitis B or C and every year 1.4 million people die from viral hepatitis; that’s as many as die from HIV/AIDS and yet the disease remains remarkably neglected. Written by Dylan O'Sullivan, Programme Manager, World Hepatitis Alliance.

Apply for a Congress bursary now!

Events
We are really pleased to announce that the bursary process for the 7th Global Patients Congress , to be held in London, 9-11 April 2016, is now live!

The pressing issue of biosimilar medicines

Events
We will be building on our existing biosimilar work by taking part in the BIO International Convention in Philadelphia from 15-18 June.

Unlocking access to the best health technology

Events
Despite the needs of patients increasing around the world, healthcare continues to be inaccessible and too expensive for many people. New technology is beginning to change this but must be evaluated properly.

The importance of access this World MS Day

Events
Sophie Paterson, Communications Manager from MSIF, explores why access for people with MS is so important this World MS Day on 27 May 2015.

Bursaries to attend 7th Global Patients Congress

Events
The bursary process to attend the 7th Global Patients Congress (2016) opens soon.

Race for runners assisted with medical technology

Events
Are you a runner who has benefited from medical technology? Applications are open to take part in Medtronic's annual race in Minneapolis, USA, with flights, accommodation and more included.

Call to help shape 7th Global Patients Congress 2016

Events
Call for applications: join the Advisory Committee for the 7th Global Patients Congress in 2016.

Rare Disease Day 2015: Day-by-day, hand-in-hand

Events
Rare Disease Day took place on 28 February 2015, uniting patients and patients’ organizations around the world to raise awareness about rare diseases.

Celebrating success of ethical collaboration framework

Events
The first anniversary of the Consensus Framework for Ethical Collaboration, between patients’ organizations, healthcare professionals and the pharmaceutical industry, was marked on the fringes of the 135th World Health Organization Executive Board meeting in Geneva, on 26 January 2015.

Patient Solidarity Day 2014 a resounding success

Events
On 6 December 2014, patients’ organizations from around the world, from Poland to Pakistan, from Nigeria to Chile stood in solidarity and called for truly patient-centred healthcare available to all, under the theme of ‘One voice. United. Universal’.

Calls for universal health coverage at WHO meetings in 2014

Events
IAPO representatives shared the patient voice at four WHO Regional Committee meetings during 2014.

Sharing the patient voice on a global scale

Events
IAPO will attend and make interventions on behalf of patients at the World Health Organization’s Executive Board meeting in Geneva, Switzerland in January 2015.

Patient Solidarity Day a big success!

Events
Patient Solidarity Day 2014 was a big success, with hundreds of people taking part all around the world. See our story of the day!

Does a healthy breakfast decrease the risk of diabetes?

Events
IAPO Chair Elect Jolanta Bilinska recently represented IAPO at World Diabetes Day 2014 . She shared her experiences with us.

Reflections from the WHO EMRO meeting

Events
IAPO Governing Board member Hussain Jafri attended the WHO Regional Committee meeting for the Eastern Mediterranean region in Tunis, Tunisia from 19 to 22 October 2014. He shared a few thoughts with us.

Patient Solidarity Day has nearly arrived!

Events
IAPO, together with more than 50 patients’ organizations and hundreds of patients from across the world, are uniting to make patient-centred healthcare a reality this Saturday.

IAPO chair speaks on the crucial role of patients

Events
KP Tsang, IAPO Chair, recently attended and spoke at the Fourth International Hospital Federation (IHF) Hospital and Healthcare Leadership Summit, held in Seoul, South Korea on 13 November 2014.

Save the date! Patient Solidarity Day

Events
Save the date: 6 December 2014! High quality, equitable and affordable healthcare; nothing more than a dream for so many people around the world. This needs to change. We have all been a patient at some point in our lives, or cared for one. It’s time to stand together in solidarity to call for...

IAPO Latin America Meeting report available

Events
In August 2014, we held our fourth regional meeting in Latin America to coincide with the 16th International Conference of Drug Regulatory Authorities in Rio de Janeiro, Brazil. The meeting report is now available.