News Archive: Events

This year's road map for the fight against viral hepatitis continues to be led by the World Hepatitis Alliance as it aims to build on the momentum to meet the goal of eliminating hepatitis following the adoption of WHO’s global hepatitis elimination strategy in 2016 .
The World Health Organization’s Executive Board (WHO EB) met for its 140 th Session during the week commencing 23 rd January 2017. Sophie Andersson, the Executive Director of our member the International Federation of Psoriasis Associations (IFPA), attended this Session. She shared her experience...
On Saturday 3 December, a global patient movement will rally together on Patient Solidarity Day in a united call for patient-centred universal health coverage for all by 2030. Around 200 leading patient organizations across the world are expected to join forces on Saturday to hold governments and...
On World Hepatitis Day, 28 July 2016, the World Hepatitis Alliance, together with a large number of civil society organizations, will launch a global movement to eliminate viral hepatitis by 2030.
Once again the auspicious ninth lunar month in the Islamic calendar is here! It's an exciting time for many of our Muslim patient members and their families as they plan to fulfil their obligations to fast for a month starting around 7th June 2016.
Thank you to everyone who joined us for the 7th Global Patients Congress from 9-11 April. The event was more member-led than ever before and represented another step forward for the global patient movement.
Worldwide, five million people live with Crohn’s disease and ulcerative colitis, conditions known as inflammatory bowel diseases (IBD).
Applications are open for the 2016 Global Heroes team. The team honours runners from around the world who benefit from medical technology, with no restriction on manufacturer.
Congress is our flagship event where we bring together our global membership with a variety of high level healthcare stakeholders to discuss important issues for patients worldwide.
Speaker presentations from the 7th Global Patients Congress are now available.
150 patients’ advocates from 48 countries are meeting in London to discuss how innovation can help achieve universal, patient-centred and sustainable access to healthcare around the world. Follow the action live on Twitter , Facebook and #GPC2016 .
With less than a month to go until Congress, the IAPO office is a hive of activity! Registrations have doubled in the last month and we can't wait to see you there. The event promises to be an exciting time. You'll meet with patients' representatives, health professionals and experts from across the globe. Don't miss out!
There is one month to go until the 7th Global Patients Congress begins!
Speaker biographies for the 7th Global Patients Congress are now available.
(ESP only) Las Enfermedades Raras (ER) son en su mayoría enfermedades graves, crónicas y progresivas que producen una alta carga familiar y social y plantean retos a los sistemas de salud y protección social muy distintos a los de las enfermedades comunes.
The 7th Global Patients Congress will feature a wide range of excellent speakers.
There are two months to go until the 7th Global Patients Congress ! We know that our members are working hard and are incredibly busy but please don’t forget to register now if you intend to join us. We are pulling together final preparations and do not want you to miss out.
Please help us evaluate Patient Solidarity Day 2015. Whether you hosted an event, shared via social media or chose not to take part last year, we want to hear from you.
We have developed a resources pack to help you apply for funding to attend Congress.
Welcome to the latest Global Patients Congress newsletter from a cold IAPO office! Momentum around the event is building and the programme is shaping up to be the best ever.
World Cancer Day unites the world’s population in the fight against cancer. It aims to save millions of preventable deaths each year by raising awareness and educating about the disease, pressing governments and individuals across the world to take action.
On 29 February 2016, people living with or affected by a rare disease, patient organizations, politicians, carers, medical professionals, researchers and industry will come together to celebrate the ninth annual Rare Disease Day.
Technological advances in scientific research have placed us in a universe of knowledge that today allows us to speak of more than 8,000 rare diseases (EPOF) that affect 8% of the world population, as determined by WHO. However, governments are not following at the same pace, causing a gap between knowledge of treatment and access to treatment.
By Brian Kennedy, Executive Director of the Global Alliance for Patient A ccess. In December I had the pleasure of participating in the Latin American Patient Summit on Biotherapeutics, where I offered the assembled advocates some unexpected advice: tell stories.
We are really pleased to announce two new speakers for the 7th Global Patients Congress, from 9-11 April 2016.
Over 100 organizations from 31 countries helped make the Day a great success.
Apply to attend or speak at the 7th Global Patients Congress in 2016.​
We are delighted to announce that the open call process for presenters is now live for the 7th Global Patients Congress, to be held in London, April 2016. Please apply below.
Thank you to every IAPO member who voted on the theme for Patient Solidarity Day 2015. We had many responses and are excited to launch a truly member-centred, member-driven event – chosen by you!
In August 2015, in Panama City, we held our fifth IAPO Latin American regional meeting, moderated the third Latin American Summit of Patients’ Organizations sponsored by Novartis and participated in the 7th Latinapso meeting.
Written by Ziede Mesonyte, IAPO Operations Coordinator, who attended the WHO Regional Committee meeting in Vilnius, Lithuania, from 14 – 17 September 2015.
We are delighted to announce that the 7th Global Patients Congress ( Selsdon Park Hotel, London, 9-11 April 2016) will focus on how to boost the reach and impact of patients’ organizations.
Every three seconds, someone in the world develops dementia. Today, more than 46 million people are living with the disease. This number is set to almost double every 20 years, making dementia one of the most significant health crises of the 21st century.
Rose, IAPO’s Senior Membership Officer, blogs on preparing for the WHO Regional Committee meetings, what members can expect from attending, and how we work to include you in advocacy at WHO.
IAPO will be hosting a Regional Meeting for Latin American Members, in Panama, on 24 and 25 August.
IAPO Seminar: Innovation, regulation and patient-centred healthcare – 24 August 2015, from 09:00 to 12:30, Panama City, Panama Please save the date for our multi-stakeholder seminar in Latin America entitled, ‘Innovation, regulation and patient-centred healthcare.'
Worldwide, 400 million people are living with hepatitis B or C and every year 1.4 million people die from viral hepatitis; that’s as many as die from HIV/AIDS and yet the disease remains remarkably neglected. Written by Dylan O'Sullivan, Programme Manager, World Hepatitis Alliance.
We are really pleased to announce that the bursary process for the 7th Global Patients Congress , to be held in London, 9-11 April 2016, is now live!
We will be building on our existing biosimilar work by taking part in the BIO International Convention in Philadelphia from 15-18 June.
Despite the needs of patients increasing around the world, healthcare continues to be inaccessible and too expensive for many people. New technology is beginning to change this but must be evaluated properly.
Sophie Paterson, Communications Manager from MSIF, explores why access for people with MS is so important this World MS Day on 27 May 2015.
The bursary process to attend the 7th Global Patients Congress (2016) opens soon.
Are you a runner who has benefited from medical technology? Applications are open to take part in Medtronic's annual race in Minneapolis, USA, with flights, accommodation and more included.
Call for applications: join the Advisory Committee for the 7th Global Patients Congress in 2016.
Rare Disease Day took place on 28 February 2015, uniting patients and patients’ organizations around the world to raise awareness about rare diseases.
The first anniversary of the Consensus Framework for Ethical Collaboration, between patients’ organizations, healthcare professionals and the pharmaceutical industry, was marked on the fringes of the 135th World Health Organization Executive Board meeting in Geneva, on 26 January 2015.
On 6 December 2014, patients’ organizations from around the world, from Poland to Pakistan, from Nigeria to Chile stood in solidarity and called for truly patient-centred healthcare available to all, under the theme of ‘One voice. United. Universal’.
IAPO representatives shared the patient voice at four WHO Regional Committee meetings during 2014.
IAPO will attend and make interventions on behalf of patients at the World Health Organization’s Executive Board meeting in Geneva, Switzerland in January 2015.
Patient Solidarity Day 2014 was a big success, with hundreds of people taking part all around the world. See our story of the day!
IAPO Chair Elect Jolanta Bilinska recently represented IAPO at World Diabetes Day 2014 . She shared her experiences with us.
IAPO Governing Board member Hussain Jafri attended the WHO Regional Committee meeting for the Eastern Mediterranean region in Tunis, Tunisia from 19 to 22 October 2014. He shared a few thoughts with us.
IAPO, together with more than 50 patients’ organizations and hundreds of patients from across the world, are uniting to make patient-centred healthcare a reality this Saturday.
KP Tsang, IAPO Chair, recently attended and spoke at the Fourth International Hospital Federation (IHF) Hospital and Healthcare Leadership Summit, held in Seoul, South Korea on 13 November 2014.
Save the date: 6 December 2014! High quality, equitable and affordable healthcare; nothing more than a dream for so many people around the world. This needs to change. We have all been a patient at some point in our lives, or cared for one. It’s time to stand together in solidarity to call for...
In August 2014, we held our fourth regional meeting in Latin America to coincide with the 16th International Conference of Drug Regulatory Authorities in Rio de Janeiro, Brazil. The meeting report is now available.