News

Rare Diseases and Birth Defects Registry in developing countries

Members
Contributed by Thong Meow-Keong, Malaysian Rare Disorders Society (IAPO member) Rare diseases particularly birth defects are a major causes of disability in developing countries (1,2). There is lack of data on birth defects from large population-based studies in the Asia-Pacific region (3). The...

PATIENTS’ RIGHTS HAVE NO BORDERS

Members
On 1 March 2017, Active Citizenship Network is going to celebrate the first anniversary of its EU communication campaign on cross-border healthcare. Foreseen by Directive 2011/24/EU – it’s named Patients’ rights have no borders – with a multi stakeholder conference at the EU Parliament. The...

Anti-counterfeit Network Africa Launched

Members
On 15 February 2016, the Anti-counterfeit Network Africa was launched in Uganda to help in intensifying the fight against production & supply of Counterfeit drugs to ensure patient access to quality medicine. According to WHO, Substandard, spurious, falsely labelled, falsified and counterfeit (...

Policy Briefing #1: Patient-Centred Healthcare

Members
IAPO’s 2017 member engagement and empowerment plan will be centred on four main thematic areas: Patient-centred healthcare, Access, Accountability and Transparency, and the Patient Solidarity Day theme (to be decided by our members in the forthcoming months). This policy document kicks off our...

Act globally, think locally. It all leads to a WHO resolution….

Members
Sophie Andersson, Executive Director of the International Federation of Psoriasis Associations (IFPA), returns to the World Health Organization’s 140th Executive Board Session this year where in 2014 IFPA got through a historic resolution recognizing psoriasis as a non-communicable disease and...

What should this year's theme be for Patient Solidarity Day?

Members
Suggest to us what the 2017 Patient Solidarity Day theme should be

IAPO collaborates with iPRI to access epidemiology and statistical support

Partnerships
The International Prevention Research Institute (iPRI) President Professor Peter Boyle signed an important Memorandum of Understanding with our Chair of the Board Jolanta Bilińska to mark the World Cancer Day. The role of patients’ organizations is morphing rapidly from its initial lobbying focus...

Patient Solidarity Day - highlights from 2016 and looking foward to 2017

Members
We are asking for everyone within IAPO’s network to send us suggested topics for the Patient Solidarity Day 2017 theme.

IAPO’s member engagement and empowerment plan for 2017 - setting out the key themes

Members
2016 was a great year for IAPO and our community of members and collaborators! In April 2016, we held the 7th Global Patient Congress which was attended by 136 delegates from different backgrounds. In December 2016, patients from all over the world came together to celebrate Patient Solidarity Day...

140th Session of the WHO Executive Board Jan 2017

Events
The World Health Organization’s Executive Board (WHO EB) met for its 140th Session during the week commencing 23rd January 2017. Sophie Andersson, the Executive Director of our member the International Federation of Psoriasis Associations (IFPA), attended this Session. She shared her experience on...

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