News Archive: February 2016

Speaker biographies for the 7th Global Patients Congress are now available.
Over the course of 2016, IAPO will be looking at what e-learning resources are currently available and how we can help fill the gaps.
10 March 2016 will see the eleventh World Kidney Day take place. This year’s theme is ‘Kidney Disease & Children. Act Early to Prevent It!’ The day will focus on improving education, facilitating early detection and ensuring that throughout an individual’s life – starting at birth – everyone is well equipped to combat and manage kidney disease.
We would like to thank both KP Tsang and Eva Maria Ruiz de Castilla, who have left the IAPO Governing Board after many years of service.
From 4-6 February 2016, EFCCA (the European Crohn´s and Ulcerative Colitis Associations) together with GAfPA (Global Alliance for Patient Access), organised an advocacy workshop on patient safety in Barcelona that gathered over 60 patient representatives from a wide range of immune modulate disease groups and other organizations .
We are very pleased to announce that IAPO’s official relations status with the World Health Organization has been renewed.
A brief look at universal health coverage examples in the UK and Thailand.
(ESP only) Las Enfermedades Raras (ER) son en su mayoría enfermedades graves, crónicas y progresivas que producen una alta carga familiar y social y plantean retos a los sistemas de salud y protección social muy distintos a los de las enfermedades comunes.
The 7th Global Patients Congress will feature a wide range of excellent speakers.
There are two months to go until the 7th Global Patients Congress ! We know that our members are working hard and are incredibly busy but please don’t forget to register now if you intend to join us. We are pulling together final preparations and do not want you to miss out.
Mental health advocates have been surprised by two reviews of mental health services arriving at the same time.
Please help us evaluate Patient Solidarity Day 2015. Whether you hosted an event, shared via social media or chose not to take part last year, we want to hear from you.
We have developed a resources pack to help you apply for funding to attend Congress.
The World Hepatitis Alliance (WHA) presents Tools For Change, a three-part webinar series aimed at educating and up skilling viewers on various aspects of advocacy and the tools needed to effectively lobby for change.
Welcome to the latest Global Patients Congress newsletter from a cold IAPO office! Momentum around the event is building and the programme is shaping up to be the best ever.
World Cancer Day unites the world’s population in the fight against cancer. It aims to save millions of preventable deaths each year by raising awareness and educating about the disease, pressing governments and individuals across the world to take action.
On 29 February 2016, people living with or affected by a rare disease, patient organizations, politicians, carers, medical professionals, researchers and industry will come together to celebrate the ninth annual Rare Disease Day.
Technological advances in scientific research have placed us in a universe of knowledge that today allows us to speak of more than 8,000 rare diseases (EPOF) that affect 8% of the world population, as determined by WHO. However, governments are not following at the same pace, causing a gap between knowledge of treatment and access to treatment.
The World Health Organization (WHO) held the first of its twice-yearly Executive Board meetings for 2016 at the end of January.
They say that in the past, governments avoided international scrutiny of their national health policies by evoking sovereignty as a defence. Things have changed over the last fifteen years as global health governance starts taking root.
This year's Congress will focus on 'innovation improving sustainable access: how to boost your reach and impact'.