News

From collapse to case study: the Castro, birthplace of modern patient advocacy

Policy
In the 1980s, the Castro District of San Francisco was under attack from an unknown and devastating disease that was killing its young men, and attacked by the media, politicians and society that forced it to the brink of collapse.

Meeting new board members: Hussain Jafri

Members
We will be welcoming Hussain Jafri, Secretary General for Alzheimer's Pakistan, to our Governing Board in August 2016.

Meeting new board members: Bejon Misra

Members
We will be welcoming Bejon Misra, the founder of the Consumer Online Foundation, India, to our Governing Board in August 2016. Bejon answered a few questions about his work, what he brings to IAPO and why he is involved in patient advocacy work.

‘NOhep’: Eliminating viral hepatitis by 2030

Events
On World Hepatitis Day, 28 July 2016, the World Hepatitis Alliance, together with a large number of civil society organizations, will launch a global movement to eliminate viral hepatitis by 2030.

Tackling diabetes at grassroots level in Uganda

Members
IAPO member, Uganda Platform for Diabetics (UPLAD), has been developing innovative ways to tackle diabetes in community settings. By starting and running ‘Diabetic Camps’ in different locations across Uganda, UPLAD has managed to screen, diagnose and educate many people through one day events.

How an online patient group proved its value to me

Partnerships
IAPO Governing Board Member Matthias Wienold wrote a blog for the British Medical Journal about online patient groups and the value they bring.

The push for UHC: A breakthrough for patients in Argentina

Members
The Ministry of Health for Argentina has recently passed a law in support of Universal Health Coverage. Isabel Rolando, President of Concebir , explores what this means for patients in Argentina today.​

Bladder problems are not an inevitable part of aging

Members
Bladder problems are not an inevitable part of aging. Find out more during World Continence Awareness Week, 20-26 June 2016.

Meeting new board members: Androulla Eleftheriou

Members
We will be welcoming Androulla Eleftheriou, Executive Director of Thalassaemia International Federation, to our Governing Board in August 2016. Androulla answered a few questions about her work, what she brings to IAPO and why she is involved in patient advocacy work.

Meeting new board members: Andrew Spiegel

Members
We will be welcoming Andrew Spiegel, Executive Director of Global Colon Cancer Association, to our Governing Board in August 2016. Andrew answered a few questions about his work, what he brings to IAPO and why he is involved in patient advocacy work.

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