Members

2016 was a great year for IAPO and our community of members and collaborators! In April 2016, we held the 7th Global Patient Congress which was attended by 136 delegates from different backgrounds. In December 2016, patients from all over the world came together to celebrate Patient Solidarity Day...
The WHO Western Pacific Region (WHO WPR ) held its first technical advisory group on universal health coverage 12-14 December 2016 in Manila Philippines. This meeting was attended by many State and non-State actors in the Region. IAPO was represented by our member Josef De Guzman, President of Psoriasis Philippines.
In November 2016, Anna Oliva from Acción Psoriasis, the Spanish Association of Patients of Psoriasis and Arthritis Psoriatic, had the opportunity to participate in the European He althcare Industry Training: Compliance Certification Program. In this article, she shared her experience and insight with us.
This year our Christmas and New Year’s Card featured the mythical Fire-Fox; a symbol of good health and prosperity in the Suomi Tribes (Lapland Finland). After it went public, we were contacted by many patient organizations who wanted to share their own regional and national totem animal stories...
New York witnessed a rare event on 11 November 2016. After decades of hard work, the rare diseases patient-voice final reached the ears of the United Nations and the world. The UN Headquarters on 405 East 42nd Street saw the launch of the NGO Committee for Rare Diseases (NGOCRD) The NGOCRD is a...
Dalilah Kalla, IAPO representative from member Lupus Alert (Mauritius), represented IAPO at two WHO and Civil Society meetings on Non-Communicable Diseases in Mauritius. By Dalilah Kalla, from Lupus Alert The establishment of an African non-State actors’ network and the development of a regional...
Dr. Androulla Eleiftheriou is the Executive Director of Thalassaemia International Federation (TIF) and an IAPO Board Member. In this specially commissioned article, she explores how patients at TIF have led the way in patient centred medical education. TIF set-up an innovative online MSc degree in...
IAPO is part of Get Real , a multi-stakeholder research project of the Innovative Medicines Initiative (IMI) that aims to investigate how real-world evidence can be effectively used in the drug development process. Within the research consortium, IAPO is carrying out research on patients’...
Reporting by Kawaldip Sehmi, IAPO CEO, from the FIFARMA strategy meeting in Panama City A good start-invite the patients to observe! Like most of us, you are probably now searching the Internet for the acronym FIFARMA. You will find very little about it! The Federacion Latinoamericana de la...
Board Member Joshua Wamboga reports from the World Health Organization Africa's 66th Regional Committee meeting held in Addis Ababa, Ethiopia, 19-23 August 2016 Saving the best for last Africa has a way of dragging out the best for last when it comes to important discussions on health. The World...

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