Members

New York witnessed a rare event on 11 November 2016. After decades of hard work, the rare diseases patient-voice final reached the ears of the United Nations and the world. The UN Headquarters on 405 East 42nd Street saw the launch of the NGO Committee for Rare Diseases (NGOCRD) The NGOCRD is a...
Dalilah Kalla, IAPO representative from member Lupus Alert (Mauritius), represented IAPO at two WHO and Civil Society meetings on Non-Communicable Diseases in Mauritius. By Dalilah Kalla, from Lupus Alert The establishment of an African non-State actors’ network and the development of a regional...
Dr. Androulla Eleiftheriou is the Executive Director of Thalassaemia International Federation (TIF) and an IAPO Board Member. In this specially commissioned article, she explores how patients at TIF have led the way in patient centred medical education. TIF set-up an innovative online MSc degree in...
IAPO is part of Get Real , a multi-stakeholder research project of the Innovative Medicines Initiative (IMI) that aims to investigate how real-world evidence can be effectively used in the drug development process. Within the research consortium, IAPO is carrying out research on patients’...
Reporting by Kawaldip Sehmi, IAPO CEO, from the FIFARMA strategy meeting in Panama City A good start-invite the patients to observe! Like most of us, you are probably now searching the Internet for the acronym FIFARMA. You will find very little about it! The Federacion Latinoamericana de la...
Board Member Joshua Wamboga reports from the World Health Organization Africa's 66th Regional Committee meeting held in Addis Ababa, Ethiopia, 19-23 August 2016 Saving the best for last Africa has a way of dragging out the best for last when it comes to important discussions on health. The World...
9 August 2016
IAPO board member, Joshua Wamboga, participated in the National Cancer Institute’s Directors Meeting in Lyon, France in July 2016, held by the International Prevention Research Institute (iPRI) and Institute of Global Public Health. The event brought together over 100 directors of national cancer...
5 September 2016
The European Lung Foundation is holding a free event in London on how air quality impacts our lung health, where you can hear about the latest research in the field and ask lung health experts your questions.
Innovation improving sustainable access: boosting your reach and impact.
This August, Migdalia Denis, from the Pulmonary Hypertension Latin Society, will join the IAPO Governing Board.

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