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Rare Disease Day 2019,a day to raise awareness amongst the general public on rare diseases and encourage researchers and decision makers to address the needs of patients with rare diseases was this year marked with a lot of activity. One notable activity was the NGO Committee for Rare Disease...
We would like to congratulate IAPO member Migdalia Denis, President and Founder of Pulmonary Hypertension Latin Society who was celebrated as a heart hero for World Heart Day. Migdalia shares her story with us. I’ve been an advocate for Latin American patients since the foundation of Sociedad...
Kawaldip Sehmi, IAPO CEO, attended the First International Conference on Renewable Energy for Healthcare (IRENA) in Singapore 2 November 2018 where a stimulating discussion took place around the availability of reliable, affordable and safe electricity supply that powers 90% of the health devices...
IAPO as a global patients' organisation must appreciate the globalism of health care initiatives and their links with the global economic, social, political and technological developments. The Declaration on Primary Health Care Astana adopted on 25 October 2018 in Astana Kazakhstan must be...
IAPO Member, Regina Mariam Kamoga from Community Health and Information Network (CHAIN) in Uganda, shares her experience in joining the Council for International Organizations of Medical Sciences (CIOMS) working group aimed at involving patients in the development and safe use of medicines. Gone...
The Association for Diabetes Care in Argentina, CUI.D.AR, together with a group of children and young adults with type 1 diabetes, met with the Argentinian Minister of Health, Dr. Adolfo Rubinstein, and members of Congress Nicolás Massot and Carmen Polledo and the National Senator Esteban...
On 30 th October, WHO will host the First WHO Conference on Air Pollution and Health in Geneva .The conference is in response to a World Health Assembly mandate to combat one of the world’s most significant causes of premature death-air pollution. This conference will look at how air...
Since the beginning of the pandemic in March 2020, our community is struggling with lack of scientific information for patients. There was a lot of misinformation among the general public and because of that the panic increased. Although the Ministry of Health regularly published information to...
Since the beginning of the pandemic in March 2020, our community is struggling with lack of scientific information for patients. There was a lot of misinformation among the general public and because of that the panic increased. Although the Ministry of Health regularly published information to...
Epilepsy Support Association Uganda exists to mobilize, organize, support, skill, care, and advocate for the rights of people with epilepsy to live a dignified life. In October 2020, ESAU with the support of the IAPO COVID-19 Response Activity Grant, embarked on raising awareness to its members on...

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