Members

The Ugandan community marks PSD2018

Members
On the 6th of September 2018, Community Health and Information Network (CHAIN) in partnership with Uganda Alliance for Patients Organisation (UAPO), organized the Patient Solidarity Day (PSD) 2018, in Kiwenda Nabitalo, Wakiso district. The participatory event brought together over 200 participants...

White paper launched to drive action for sustainable action for circulatory health

Members
On 25 September, just ahead of the High-Level Meeting on NCDs, the Global Coalition for Circulatory Health , which IAPO is part of, launched a new White Paper for Circulatory Health: Driving Sustainable Action for Circulatory Health . The white paper is a solution-oriented paper which draws on...

Fight the Fakes: ´Making each dose count´

Members
On Saturday 21st July 2018, IAPO member Mary Lynne Van Poelgeest-Pomfret of World Federation of Incontinent Patients represented IAPO and the Fight the Fakes campaign at the 22nd International AIDS Conference in Amsterdam at the Imperial Health Sciences’ Pre-Conference Side-Event. Here she...

Meeting new board members: Ya Hsin Wang

Members
We welcome Ya Hsin Wang, Secretary General of Psoriasis Association Taiwan and the executive director of Taiwan Alliance of Patients' Organizations, to our Governing Board starting from August 2018. Ya Hsin answered a few questions about her work, what she brings to IAPO and why she is involved...

Meeting new board members: Ellos Ellard Lodzeni

Members
We welcome Ellos Ellard Lodzeni, Patron and Founder Trustee of Patient and Community Welfare Foundation of Malawi, to our Governing Board starting from August 2018. Ellos answered a few questions about his work, what he brings to IAPO and why he is involved in patient advocacy work. Why are you...

IAPO member, Psoriasis New Life El Salvador advance their efforts towards patient centred healthcare

Members
Evelyn de Aguirre of Psoriasis New Life El Salvador shares her organization’s experience in their advocacy for people with Psoriasis and Psoriatic Arthritis in El Salvador which has culminated in a working alliance between them and the Ministry of Health of El Salvador. Psoriasis New Life El...

Meeting new board members: Karen Alparce-Villanueva

Members
We welcome Karen Alparce-Villanueva, Vice-President of the Philippine Alliance of Patient Organizations (PAPO) and founder of Rare Cancers Philippines, to our Governing Board starting from August 2018. Karen answered a few questions about her work, what she brings to IAPO and why she is involved in...

Three additions to the IAPO Governing Board

Members
At IAPO's Annual General Meeting at the 8th Global Patients Congress in Miami, 24 -26 May, three IAPO members were elected to the Governing Board. New Governing Board Members - Karen Alparce-Villanueva, Philippine Alliance of Patient Organizations (PAPO) - Ellos Ellard Lodzeni, Patient and...

Congress 2018: a step forward for the global patient movement

Members
Overview of GPC2018 Sessions The 8 th Global Patients Congress has been organized to look at patient engagement and patient empowerment within the healthcare value chain. We have mapped best practice examples of patient engagement and empowerment within our alliance and multi-stakeholders. We have...

Real-World Evidence in Medicine Development Course starts April 16th

Members
Following the successful first edition of the course Real-World Evidence in Medicine Development: an online introductory course , we are happy to announce that the new edition has been set to start on April 16th - 27th May 2018​. During this 6-weeks interactive online course, you will learn about...

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