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Contributed by Thong Meow-Keong, Malaysian Rare Disorders Society (IAPO member) Rare diseases particularly birth defects are a major causes of disability in developing countries (1,2). There is lack of data on birth defects from large population-based studies in the Asia-Pacific region (3). The...
On 1 March 2017, Active Citizenship Network is going to celebrate the first anniversary of its EU communication campaign on cross-border healthcare. Foreseen by Directive 2011/24/EU – it’s named Patients’ rights have no borders – with a multi stakeholder conference at the EU Parliament. The...
On 15 February 2016, the Anti-counterfeit Network Africa was launched in Uganda to help in intensifying the fight against production & supply of Counterfeit drugs to ensure patient access to quality medicine. According to WHO, Substandard, spurious, falsely labelled, falsified and counterfeit (...
IAPO’s 2017 member engagement and empowerment plan will be centred on four main thematic areas: Patient-centred healthcare, Access, Accountability and Transparency, and the Patient Solidarity Day theme (to be decided by our members in the forthcoming months). This policy document kicks off our...
Sophie Andersson, Executive Director of the International Federation of Psoriasis Associations (IFPA), returns to the World Health Organization’s 140th Executive Board Session this year where in 2014 IFPA got through a historic resolution recognizing psoriasis as a non-communicable disease and...
Suggest to us what the 2017 Patient Solidarity Day theme should be
28 February 2017
28 February of every year, is dedicated to raising awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives. It also targets policy makers, public authorities, industry representatives, researchers, health professionals and anyone who has a...
We are asking for everyone within IAPO’s network to send us suggested topics for the Patient Solidarity Day 2017 theme.
2016 was a great year for IAPO and our community of members and collaborators! In April 2016, we held the 7th Global Patient Congress which was attended by 136 delegates from different backgrounds. In December 2016, patients from all over the world came together to celebrate Patient Solidarity Day...
The WHO Western Pacific Region (WHO WPR ) held its first technical advisory group on universal health coverage 12-14 December 2016 in Manila Philippines. This meeting was attended by many State and non-State actors in the Region. IAPO was represented by our member Josef De Guzman, President of Psoriasis Philippines.

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