This year our Christmas and New Year’s Card featured the mythical Fire-Fox; a symbol of good health and prosperity in the Suomi Tribes (Lapland Finland). After it went public, we were contacted by many patient organizations who wanted to share their own regional and national totem animal stories...
New Year is a great time for change and growth. Nittita Prasopa-Plaizier, our designated technical officer (DTO) for the WHO-IAPO official relationship, will move on to bigger and better things in 2017. Many of you met Nittita at our Global Patient Congress in April 2016. Nittita was the Programme...
On 1 st January 2017, a new era begins at the United Nations. Mr. António Guterres, the former Portuguese prime minister, will become the next UN Secretary General, replacing Ban Ki-moon. http://bit.ly/2hhWEpq Mr. Guterres was the Prime Minister of Portugal from 1995 to 2002 and the UN High...
On Saturday 3 December, a global patient movement will rally together on Patient Solidarity Day in a united call for patient-centred universal health coverage for all by 2030. Around 200 leading patient organizations across the world are expected to join forces on Saturday to hold governments and...
The International Conference of Drug Regulatory Authorities (ICDRA) is an annual event hosted for the benefit of the WHO Member States and their national medicines regulatory authorities (NMRAs); many non-State actors attend a pre-ICDRA conference to share their views with NMRAs. The 17th pre-ICDRA...
New York witnessed a rare event on 11 November 2016. After decades of hard work, the rare diseases patient-voice final reached the ears of the United Nations and the world. The UN Headquarters on 405 East 42nd Street saw the launch of the NGO Committee for Rare Diseases (NGOCRD) The NGOCRD is a...
Dalilah Kalla, IAPO representative from member Lupus Alert (Mauritius), represented IAPO at two WHO and Civil Society meetings on Non-Communicable Diseases in Mauritius. By Dalilah Kalla, from Lupus Alert The establishment of an African non-State actors’ network and the development of a regional...
UK Supreme Court (UKSC) judgment in Montgomery v Lanarkshire Health Board has closed the gap between ‘legal consent’, ‘informed consent’ and the ‘best interest’ of the patients. The full judgment, the point of law decided and the rationale for the decision (ratio decidendi) of this important case...
Dr. Androulla Eleiftheriou is the Executive Director of Thalassaemia International Federation (TIF) and an IAPO Board Member. In this specially commissioned article, she explores how patients at TIF have led the way in patient centred medical education. TIF set-up an innovative online MSc degree in...
WHO World Health Assembly (May 2016), WHO Regional Committee Meetings (Sep-Oct 2016) and the UN General Assembly Debate (Sep 2016) had great discussions on SDG 2030, UHC and health workforce strengthening. Kawaldip Sehmi, our CEO, has assembled critical thinking on this matter of some of the '...

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