During June 2016, several IAPO representatives attended the BIO International Convention in San Francisco, California. Developments in San Francisco’s Genomic Valley promise to have a ‘disruptive’ effect on current drug research, the development process, and the way the established pharmaceutical...
We are pleased to announce that Hussain Jafri , from Alzheimer's Pakistan, and Bejon Misra , from Consumer Online Foundation (India), will be joining the IAPO Governing Board in August 2016.
IAPO members represent patients around the world and often deal with challenges such as funding cuts, changes in administrations and wider economic uncertainty.
A snapshot of the patient advocacy strategies and interventions first used and developed in the Castro District in San Francisco, California, USA in the 1980s. Today an enormous rainbow flag flies proudly over the Castro proclaiming its confidence, vibrancy and community spirit.
In the 1980s, the Castro District of San Francisco was under attack from an unknown and devastating disease that was killing its young men, and attacked by the media, politicians and society that forced it to the brink of collapse.
We will be welcoming Hussain Jafri, Secretary General for Alzheimer's Pakistan, to our Governing Board in August 2016.
We will be welcoming Bejon Misra, the founder of the Consumer Online Foundation, India, to our Governing Board in August 2016. Bejon answered a few questions about his work, what he brings to IAPO and why he is involved in patient advocacy work.
On World Hepatitis Day, 28 July 2016, the World Hepatitis Alliance, together with a large number of civil society organizations, will launch a global movement to eliminate viral hepatitis by 2030.
IAPO member, Uganda Platform for Diabetics (UPLAD), has been developing innovative ways to tackle diabetes in community settings. By starting and running ‘Diabetic Camps’ in different locations across Uganda, UPLAD has managed to screen, diagnose and educate many people through one day events.
IAPO Governing Board Member Matthias Wienold wrote a blog for the British Medical Journal about online patient groups and the value they bring.