News

World Hepatitis Alliance provides free webinar series on patient group advocacy

Resources
The World Hepatitis Alliance (WHA) presents Tools For Change, a three-part webinar series aimed at educating and up skilling viewers on various aspects of advocacy and the tools needed to effectively lobby for change.

Choose your workshops for Congress

Events
Welcome to the latest Global Patients Congress newsletter from a cold IAPO office! Momentum around the event is building and the programme is shaping up to be the best ever.

'We can. I can.' this World Cancer Day

Events
World Cancer Day unites the world’s population in the fight against cancer. It aims to save millions of preventable deaths each year by raising awareness and educating about the disease, pressing governments and individuals across the world to take action.

Rare Disease Day 2016: making the voice of rare diseases heard

Events
On 29 February 2016, people living with or affected by a rare disease, patient organizations, politicians, carers, medical professionals, researchers and industry will come together to celebrate the ninth annual Rare Disease Day.

Rare diseases in Latin America

Events
Technological advances in scientific research have placed us in a universe of knowledge that today allows us to speak of more than 8,000 rare diseases (EPOF) that affect 8% of the world population, as determined by WHO. However, governments are not following at the same pace, causing a gap between knowledge of treatment and access to treatment.

Checking progress at WHO

Policy
The World Health Organization (WHO) held the first of its twice-yearly Executive Board meetings for 2016 at the end of January.

It is time to climb through our 15 year window

Policy
They say that in the past, governments avoided international scrutiny of their national health policies by evoking sovereignty as a defence. Things have changed over the last fifteen years as global health governance starts taking root.

Fake flies in urinals to fluorescent frogs: innovation in healthcare

Policy
This year's Congress will focus on 'innovation improving sustainable access: how to boost your reach and impact'.

Addressing stigma in mental health

Members
Excerpts from the 'Presidential New Year Message 2016', by Gabriel Ivbijaro MBE JP, President of the World Federation for Mental Health.

IAPO members take part in Uganda’s first patient safety workshop

Members
IAPO members CHAIN (the Community Health and Information Network) and UAPO (the Uganda Alliance of Patient Organizations) worked with the WHO (World Health Organization) to hold Uganda’s first Patients for Patient Safety workshop in November 2015.

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