News

Rare Disease Day 2016: making the voice of rare diseases heard

Events
On 29 February 2016, people living with or affected by a rare disease, patient organizations, politicians, carers, medical professionals, researchers and industry will come together to celebrate the ninth annual Rare Disease Day.

Rare diseases in Latin America

Events
Technological advances in scientific research have placed us in a universe of knowledge that today allows us to speak of more than 8,000 rare diseases (EPOF) that affect 8% of the world population, as determined by WHO. However, governments are not following at the same pace, causing a gap between knowledge of treatment and access to treatment.

Checking progress at WHO

Policy
The World Health Organization (WHO) held the first of its twice-yearly Executive Board meetings for 2016 at the end of January.

It is time to climb through our 15 year window

Policy
They say that in the past, governments avoided international scrutiny of their national health policies by evoking sovereignty as a defence. Things have changed over the last fifteen years as global health governance starts taking root.

Fake flies in urinals to fluorescent frogs: innovation in healthcare

Policy
This year's Congress will focus on 'innovation improving sustainable access: how to boost your reach and impact'.

Addressing stigma in mental health

Members
Excerpts from the 'Presidential New Year Message 2016', by Gabriel Ivbijaro MBE JP, President of the World Federation for Mental Health.

IAPO members take part in Uganda’s first patient safety workshop

Members
IAPO members CHAIN (the Community Health and Information Network) and UAPO (the Uganda Alliance of Patient Organizations) worked with the WHO (World Health Organization) to hold Uganda’s first Patients for Patient Safety workshop in November 2015.

New year's resolutions in 2016

Policy
Welcoming in a new year often brings reflection in our personal and professional lives as we think about what is coming up and what changes we want to make.

Top ten most read articles in 2015

Resources
IAPO produced 12 newsletters and around 100 articles during 2015. We have compiled the top ten most read articles from the year.

Patient safety and the power of telling stories

Events
By Brian Kennedy, Executive Director of the Global Alliance for Patient A ccess. In December I had the pleasure of participating in the Latin American Patient Summit on Biotherapeutics, where I offered the assembled advocates some unexpected advice: tell stories.

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