Each month we will be interviewing an IAPO member in six short questions. Our featured member of the month is Dr Sunil Prakash, who works with Consumers' Forum in India.
In August 2014, we held our fourth regional meeting in Latin America to coincide with the 16th International Conference of Drug Regulatory Authorities in Rio de Janeiro, Brazil. The meeting report is now available.
There was widespread consensus that drug regulators and patient groups need to work more closely together in Latin America at a multi-stakeholder seminar held in Rio de Janeiro, Brazil yesterday.
IAPO Governing Board Member Eva Maria Ruiz de Castilla recently attended two UN meetings on non-communicable diseases (NCDs). An informal interactive meeting for civil society was held on 19 June 2014 to discuss progress in NCD work since 2011 and to identify priorities going forward.
What if we could build a system of patient-centered cancer care with all the innovations we could possibly imagine? Contributed by Rebekkah Schear, Program Manager, the LIVESTRONG Foundation (IAPO member).
Each month we will be interviewing an IAPO member in six short questions. Our featured member of the month is Joshua Wamboga, who works with The AIDS Support Organization (TASO) in Uganda. Joshua is joining our Governing Board this month, and took some time out of his busy schedule to answer a few questions.
IAPO member Theobald Hepatitis B Foundation, along with partners, offered free hepatitis B screening and vaccination to hundreds of people at James Town – Mantse Abgona in Accra, Ghana, on 26 July 2014.
In June 2014, our Senior Policy Officer Rachel Seal-Jones spoke to new IAPO member Powerful Patient through a podcast. Powerful Patient is based in the United States and works to empower people living with chronic diseases or disabilities.
The result of a partnership by six All Party Parliamentary Groups in the UK, this report takes a global perspective on how to empower patients to play a more active role in their care. Drawing on case studies from low, middle and high income countries, including examples from IAPO members, it outlines how much the UK has to learn from overseas – and how these lessons should be applied. The report also highlights the UK’s strengths, its important role historically in supporting the global patient empowerment agenda, and how it can continue to play a leading role internationally.
Ascot, United Kingdom, 31 March 2014 – This was the call from Stephen Murby Wright, Consumers Health Forum of Australia during a multi-stakeholder panel discussion during the International Alliance of Patients’ Organization’s ( IAPO ) 6th Global Patients Congress, held in the UK on 29-31 March 2014. This was supported by Dame Sally Davies, Chief Medical Officer ( CMO ), UK Government, in her keynote address, who emphasised the importance of patient and public involvement: ‘Healthcare research should be carried out by and with members of the public, not just done for or to the public.’

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