Contributed by Camilla Krogh Lauritzen, Chief Patient Officer, LEO Pharma 28 February is Rare Disease Day. Hardly any surprise to anyone who is committed to changing the status quo for the millions of people affected by one or more of the 7000+ rare diseases. But then again, it may be news for many...
Sexual intimacy challenges can be a difficult topic to talk about, even though common for people with and without chronic conditions. To get the conversation going about sex and multiple sclerosis (MS), MS International Federation (MSIF) – an IAPO member – has recently launched an...
We welcome Building Lives Foundation, El Salvador, to IAPO starting from January 2019. They have answered a few questions about their work, why they are involved in patient advocacy work and their thoughts and expectations as they join our global network. Why are you involved in the work that you...
Patients need to be able to trust in the interactions between pharma, healthcare professionals and medical representatives By Thomas Cueni, IFPMA Director General and co-chair of the APEC Biopharmaceutical Working Group on Ethics An efficient healthcare system depends on mutual trust between...
The manufacture and distribution of fake medicines is an enormous and growing public health risk with an untold cost to lives. According to a report published by the World Health Organisation , one in ten medical products circulating in low- and middle-income countries are estimated to be either...
On the 6th of September 2018, Community Health and Information Network (CHAIN) in partnership with Uganda Alliance for Patients Organisation (UAPO), organized the Patient Solidarity Day (PSD) 2018, in Kiwenda Nabitalo, Wakiso district. The participatory event brought together over 200 participants...
September, 2018 New York - The UN General Assembly is the main deliberative, policymaking and representative organ of the United Nations. 193 Countries come together to deliberate on national and global policies. This year the Sustainable Development Goals (SDGs) were discussed in every meeting...
On 25 September, just ahead of the High-Level Meeting on NCDs, the Global Coalition for Circulatory Health , which IAPO is part of, launched a new White Paper for Circulatory Health: Driving Sustainable Action for Circulatory Health . The white paper is a solution-oriented paper which draws on...
IAPO members from Ghana, Christopher Agbega of Sharecare Ghana and Theobald Owusu-Ansah of Hepatitis Foundation of Ghana , represented IAPO at the 'Africa Stakeholder Roundtable: Trust in Healthcare Systems' organised by the Fight the Fakes Campaign and The International Federation of...
We would like to congratulate IAPO member Dr Yasmin Rashid , Secretary General of Thalassaemia Society of Pakistan, for her appointment as Health Minister in Punjab Province, Pakistan. Dr Rashid, who most recently spoke at IAPO’s 8th Global Patients Congress , highlighted the need to super-...

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