Rare Disease Day 2019,a day to raise awareness amongst the general public on rare diseases and encourage researchers and decision makers to address the needs of patients with rare diseases was this year marked with a lot of activity. One notable activity was the NGO Committee for Rare Disease...
On 28 February 2019, people living with or affected by a rare disease, patient organizations, politicians, carers, medical professionals, researchers and industry will come together to celebrate the twelfth annual Rare Disease Day. A patient-led campaign, organizations in over 70 countries and...
We at IAPO are extremely delighted that the 144th Session of the WHO Executive Board (EB), deliberated on the agenda item ‘Global Action on Patient Safety’ and adopted the Executive Board Resolution ‘ Global Action on Patient Safety’ on 31 January 2019 including the...
The European Medicines Verification Organisation, an IAPO partner through the Fight the Fakes campaign launched the world’s first digital verification system covering the medicines supply chain across Europe that promises greater security against falsified medicines. The launch of the world...
The Alliance for Safe Online Pharmacy (ASOP EU) is on a mission to create and promote an environment that enables patients to safely buy their medicines online in a space permitted by law. Mike Isles, Executive Director ASOP EU explores this further. The manufacture and distribution of fake...
Patient Solidarity Day 2018 has come and gone and we couldn’t be more pleased with the results. Our goal this year was to elevate the momentum in the conversation around Safe healthcare and we are excited to see patient safety continue to receive global prioritisation and look forward to...
We are pleased to announce that the overall winner of our Patient Solidarity Day 2018 photo competition is Uganda Alliance of Patients Organizations (UAPO) Congratulations,UAPO! UAPO was successful in submitting a photo that majority of the criteria set out in the photo competition here. For their...
Patient Safety Movement (PSM) a non-profit organization committed to eliminating the more than 4,800,000 preventable deaths that occur in hospitals across the world every year joined us in marking PSD2018. They do this through encouraging hospitals to implement Actionable Patient Safety Solutions (...
We would like to congratulate IAPO member Migdalia Denis, President and Founder of Pulmonary Hypertension Latin Society who was celebrated as a heart hero for World Heart Day. Migdalia shares her story with us. I’ve been an advocate for Latin American patients since the foundation of Sociedad...
Kawaldip Sehmi, IAPO CEO, attended the First International Conference on Renewable Energy for Healthcare (IRENA) in Singapore 2 November 2018 where a stimulating discussion took place around the availability of reliable, affordable and safe electricity supply that powers 90% of the health devices...

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