Gene therapy continues to evolve with new emerging treatments finally reaching its promised potential: providing a one-time lifelong cure for even the rarest and most severe of genetic disorders. IAPO member Thalassaemia International Federation explores this topic by highlighting the significant...
La agenda sobre la seguridad global del paciente continúa cobrando impulso con la reunión de los profesionales de salud que tuvo lugar en Jeddah, Arabia Saudita el 2 y 3 de marzo 2019, dentro de marco de la 4ta Cumbre Ministerial Mundial sobre la Seguridad del Paciente. El é...
Is tackling premature mortality caused by the world’s number one killer – heart disease, something that interests you? Global leaders, individuals and organizations in the field of circulatory health are invited to partner in furthering cardiovascular health through the World Heart...
Contributed by Camilla Krogh Lauritzen, Chief Patient Officer, LEO Pharma 28 February is Rare Disease Day. Hardly any surprise to anyone who is committed to changing the status quo for the millions of people affected by one or more of the 7000+ rare diseases. But then again, it may be news for many...
Sexual intimacy challenges can be a difficult topic to talk about, even though common for people with and without chronic conditions. To get the conversation going about sex and multiple sclerosis (MS), MS International Federation (MSIF) – an IAPO member – has recently launched an...
We welcome Building Lives Foundation, El Salvador, to IAPO starting from January 2019. They have answered a few questions about their work, why they are involved in patient advocacy work and their thoughts and expectations as they join our global network. Why are you involved in the work that you...
Patients need to be able to trust in the interactions between pharma, healthcare professionals and medical representatives By Thomas Cueni, IFPMA Director General and co-chair of the APEC Biopharmaceutical Working Group on Ethics An efficient healthcare system depends on mutual trust between...
The manufacture and distribution of fake medicines is an enormous and growing public health risk with an untold cost to lives. According to a report published by the World Health Organisation , one in ten medical products circulating in low- and middle-income countries are estimated to be either...
On the 6th of September 2018, Community Health and Information Network (CHAIN) in partnership with Uganda Alliance for Patients Organisation (UAPO), organized the Patient Solidarity Day (PSD) 2018, in Kiwenda Nabitalo, Wakiso district. The participatory event brought together over 200 participants...
September, 2018 New York - The UN General Assembly is the main deliberative, policymaking and representative organ of the United Nations. 193 Countries come together to deliberate on national and global policies. This year the Sustainable Development Goals (SDGs) were discussed in every meeting...

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