News Archive: Resources

World Patient Safety Day 2022

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My name is A.N.Other. I, my Lawyer and my Estate (if I do not survive this operation) inform the surgical and care team that you are Put on Notice that before applying any anasethsia, making the first cut, or stitching me up, you will follow the protocols and guidelines relevant to your particular...

World Health Organization's 10 facts on patient safety

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The global need for patient safety is a topic that Patient Solidarity Day 2018 seeks to bring to the attention of health stakeholders globally as it is a serious global public health concern. IAPO’s Declaration on patient-centred healthcare states that every patient must have access to safe,...

Healthcare Information For All

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Neil Pakenham-Walsh, Coordinator, Health Information For All (HIFA) discusses patient empowerment through knowledge. Patients, health workers and everyone who in one way or another is a stakeholder in the health sector need access to timely, reliable healthcare information to maintain the highest...

PSD 2017 - Patient empowerment depends on knowledgeable, skilled patients

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On Saturday, 2nd December, patient advocates from across the world will rally together to mark the annual Patient Solidarity Day. As a movement, we will be standing united in recognition of the significant need for and benefit of, empowered and informed patients. We believe that patient empowerment...

My Life as an Empowered Patient

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Mark-John Clifford, Co-Founder of the blog Health in the Laugh Lane , relieves his journey on how he became more empowered as patient. I believe I can trace my start as an empowered patient to when my parents were involved with my treatment as a child for polio. I don’t remember everything in the...

AMA Patient Champion Network Guide

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Call for patients to be recognised as key partners in the African Medicines Agency (AMA) On 4th – 5th July 2017, the International Alliance of Patient Organizations (IAPO) and the Uganda Alliance of Patients’ Organizations (UAPO) held the African Regional Meeting in Entebbe, Uganda, under the theme...

Patient Empowerment: Incontinence and Pelvic Floor Dysfunction

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Mary Lynne van Poelgeest-Pomfret of World Federation of Incontinence Patients shows what patient empowerment can mean in practice and how the practical implementation can change the lives of our patients/citizens for the better. The World Federation of incontinent Patients show importance and...

The Internet and Patient Empowerment

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Brian W. Wu of the Clinician Today shares his insights on the topic of internet and patient Empowerment. The effect the internet has had on nearly every aspect of life, including the role it has played in patient education and empowerment, cannot be understated. By sheer numbers, the internet’s...

An African perspective of patient empowerment

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IAPO member Danjuma Adda, Executive Director at Center for Initiative and Development (CFID)/ Chagro-Care Trust (CCT) in Taraba state, Nigeria, explores the issue of patient empowerment from an African perspective.

Rare Diseases in Latin America: Challenges and opportunities for the equitable attention and proposal of Patients Organizations

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IAPO board member Migdalia Denis and IAPO member Angela Chaves explore the issue of rare diseases in Latin America.

Living With Chronic Pain - A patient perspective

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What if every single part of your body hurts and you have no explanation? What if it’s hard for doctors to determine your diagnosis? What if there is no relief in sight? Through FindMecure, Thomas Jarvis, a patient with Complex Regional Pain Syndrome, gives us a glimpse of what it is to live with...

Understanding the science of pain management

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Pain is a serious sensory threat that can affect virtually any part of the body in varying degrees. The way people experience pain differs greatly, with some tolerating it more than others. It is important to note that pain can be significantly debilitating and affect the overall quality of life. Dr. James Trapasso , Medical Director, Presbyterian Medical Group, discusses pain management and its benefits and risks.

Blood, blood safety and blood availability - A global challenge

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The Thalassaemia International Federation takes initiative and action through the establishment of a World Alliance representing multi-transfused individuals aiming to raise awareness and support the work of WHO and of all the governments, and also raise public awareness about the risks of transfusions that may stem from the non-implementation of security protocols and the lack of compliance with relevant resolutions. This is all for the promotion of Blood Safety and Availability.

Hepatitis: A Ghana situation review

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As we prepare to mark World Hepatitis Day on 28th July, the Hepatitis Foundation of Ghana gives us an overview of the situation in Ghana as all countries in the African Region consider viral hepatitis an urgent public health issue with the burden of viral hepatitis believed to be one of the highest in this part of the world.

Is the time right for a Latin American Medicines Agency after the African Medicines Agency?

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Kawaldip Sehmi, IAPO CEO, explores medicine regulation in Latin America to develop national capacity within medicines regulatory authorities to approve medicines in a timely manner and to ensure acceptable quality, safety and efficacy standards within their borders.

The mental health burden: Where are we?

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By Elnaz Naseri, Health Policy Officer at IAPO. Depression is the leading cause of ill health and disability worldwide. [1] Alcohol-use disorder, Schizophrenia, and other mental, neurological and sub­stance-use (MNS) disorders constitute 13% of the global burden of disease surpassing both...

What health research can I trust?

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A free online course which helps participants judge how reliable health research is.

Learning resources to help you do more

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Over the course of 2016, IAPO will be looking at what e-learning resources are currently available and how we can help fill the gaps.

World Hepatitis Alliance provides free webinar series on patient group advocacy

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The World Hepatitis Alliance (WHA) presents Tools For Change, a three-part webinar series aimed at educating and up skilling viewers on various aspects of advocacy and the tools needed to effectively lobby for change.

Top ten most read articles in 2015

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IAPO produced 12 newsletters and around 100 articles during 2015. We have compiled the top ten most read articles from the year.

Can patients trust health apps on the market?

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Have you ever downloaded a health-related app on your smartphone but wondered how reliable or trust-worthy it is?

WHO Regional Committees factsheet

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Read our factsheet on WHO, Regional Committees and how we work with them.

How to change systems: the importance of measurement

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The Bill and Melinda Gates Foundation (BMGF) has launched the Primary Health Care Performance Initiative ( PHCPI ) which seeks to help low- and middle-income countries build high-performing primary healthcare systems through better performance measurement and knowledge-sharing.

Ramadan and Eid Mubarak to our Muslim members across the world

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Kawaldip Sehmi, IAPO CEO, explores the importance of patient-centred guidelines during Ramadan.

Involving patients and the public in new research journal

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BioMed Central have established a new, open access journal called Research Involvement and Engagement. Patients and the public are invited to take part in developing and reviewing the journal.

Online biosimilar platform launching soon

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IAPO Americas is an online platform which provides patients’ organizations from across the region of Latin America with up-to-date, evidence-based information on the science, technology and regulatory information relevant to biological and biosimilar medicines.

New journal on patient engagement in hospitals

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Over the past few months, we have been working with the International Hospital Federation to create a special edition of, 'World Hospitals and Health Services: The Official Journal of the International Hospital Federation'. The journal features eight examples of patient engagement in hospitals...

Report: Patient empowerment: for better quality, more sustainable health services globally

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The result of a partnership by six All Party Parliamentary Groups in the UK, this report takes a global perspective on how to empower patients to play a more active role in their care. Drawing on case studies from low, middle and high income countries, including examples from IAPO members, it outlines how much the UK has to learn from overseas – and how these lessons should be applied. The report also highlights the UK’s strengths, its important role historically in supporting the global patient empowerment agenda, and how it can continue to play a leading role internationally.