News Archive: Press and media

As a next step in IAPO’s campaign calling for Heads of State and Government to ratify the African Medicines Agency Treaty , we are delighted to inform you that we will be launching the African Medicines Agency Treaty Alliance (AMATA) on the 22nd June 2021 at the upcoming high-level meeting on the...

Gene therapy continues to evolve with new emerging treatments finally reaching its promised potential: providing a one-time lifelong cure for even the rarest and most severe of genetic disorders. IAPO member Thalassaemia International Federation explores this topic by highlighting the significant...

Is tackling premature mortality caused by the world’s number one killer – heart disease, something that interests you? Global leaders, individuals and organizations in the field of circulatory health are invited to partner in furthering cardiovascular health through the World Heart Federation Salim...

September, 2018 New York - The UN General Assembly is the main deliberative, policymaking and representative organ of the United Nations. 193 Countries come together to deliberate on national and global policies. This year the Sustainable Development Goals (SDGs) were discussed in every meeting...

IAPO members from Ghana, Christopher Agbega of Sharecare Ghana and Theobald Owusu-Ansah of Hepatitis Foundation of Ghana , represented IAPO at the 'Africa Stakeholder Roundtable: Trust in Healthcare Systems' organised by the Fight the Fakes Campaign and The International Federation of...

This September marks the 16th year that organisations and countries around the globe will be marking the International Pain Awareness Month. This year again, Painaustralia joins all our international colleagues in taking the time to spread awareness about this all too common yet neglected public...

Sheila Regina de Vasconcellos – Bakken Invitation Honoree 2015 and a patient living with Diabetes - explores the way forward for the fight against Diabetes after attending the 8th Global Patients Congress. Coming from Brazil, a country where resources are lacking and where there are few diabetes...

Each year, the Medtronic Foundation’s Bakken Invitation recognizes inspirational patients whose lives have been impacted by medical technology and who use their “extra life” to give back to others. Named after Medtronic co-founder Earl Bakken, the Bakken Invitation brings together patients who “...

At IAPO’s upcoming congress Teva Pharmaceuticals will introduce Life Effects , a new patient-centric website. It features stories from people living with chronic conditions that focus on the impact their conditions have on their day-to-day lives. Teva created Life Effects after speaking to more...

Every year, on 31 May, WHO and its partners, including the World Heart Federation, mark World No Tobacco Day to highlight risks associated with tobacco use and advocate for effective policies to reduce tobacco consumption. This year, World No Tobacco Day will focus on the important link between...

Lucy Watt, a palliative care patient advocate, explores the importance of advocacy for palliative care based on her experience as a patient living with a neuromuscular disease and intestinal failure in the perfect context of the Worldwide Hospice Palliative Care Alliance launching grants to support...

FindMeCure Foundation and Chronic Pain Ireland together with the support of IAPO organized a webinar which aimed to unravel the process of mobilizing action towards helping patients living with chronic pain access treatments in development.Through an interview, Maya representing FindMeCure...

IAPO has arranged for all delegates to be accommodated at the Miami Marriott Dadeland hotel at a special discounted IAPO rate. Please do seize this opportunity and book your room as rooms are selling out. This rate is available between 20th May 2018 - 29th May 2018 and you would need to have made...

As IAPO's flagship event, the 2018 congress will be attended by an estimated 200+ delegates from across the world, who will share best practice, gain insight into pressing healthcare issues and meet with others passionate about patient-centred healthcare. This is your chance to join them...

The 8th Global patients Congress, Empowered Patients Building the Momentum, will take place from 24th-26th May 2018 in Miami in the sunshine State of Florida USA, at the Miami Marriott Dadeland. Congress brings together around 200 patient advocates from across the world. Organizations of all sizes...

We are pleased to announce that the overall winner of our Patient Solidarity Day 2017 photo competition is Community Development Awareness and Health Empowerment Foundation (CDAHEF) – Nigeria. Congratulations, CDAHEF! CDAHEF was successful in submitting a photo that displayed creativity and the...

On this year’s Patient Solidarity Day, Psoriasis Association Taiwan located in the Western Pacific Region, was not absent in responding to this meaningful day for patients. This year we celebrated Patient Solidarity Day through coming together with other patients’ groups at the “Future Trends Forum...

Diabetes is one of the largest global health emergencies of the 21st century. According to the IDF Diabetes Atlas Eighth Edition , released in November 2017, this pandemic continues to rise, seemingly inexorably, all over the world. An estimated 425 million adults are living with diabetes in 2017,...

Inspired by this year’s theme of patient empowerment through knowledge, Ataxia & Me, the Portuguese Association for Congenital Disorders of Glycosylation ( APCDG ) and others decided to launch a challenge to a group of patients, patient associations and artists : “What if all of us united and...

We are delighted with the Patient Solidarity Day achievements this year. We had the highest number of supporters since the campaign began in 2011, with patient advocates from all over the world holding activities to mark the day. At least 175 organizations from 48 countries came together in...

On 15-17 September 2017, Migdalia Denis, IAPO board member and President and Founder of Pulmonary Hypertension Latin Society, presented at the International Society for Pharmacoeconomics and Outcomes Research’s (ISPOR) second plenary session, The Voice of the Patient, at its 6th Latin America...

Devex in partnership with U.S Pharmacopeia explores the global health challenges caused by poor-quality medicines and approaches to achieving quality-assured medicines in low and middle income countries. Each year, the proliferation of substandard and falsified medicines puts the lives of millions...

Rwanda has launched a drone delivery network to transport vital blood supplies to far-flung areas of the country. Through a partnership with the Government of Rwanda, Zipline, a Silicon Valley Start-up will deliver all blood products for twenty hospitals and health centers starting this summer,...

News release: Growing support for shared ethical principles from healthcare and medicines providers

Wednesday 1 October 2014 Media alert for immediate release The International Alliance of Patients’ Organizations (IAPO) thanks Ms Jo Groves for her dedicated service as Chief Executive Officer after ten successful years with the organization. Ms Groves has resigned from the position in order to take up new challenges.

Ascot, United Kingdom, 31 March 2014 – This was the call from Stephen Murby Wright, Consumers Health Forum of Australia during a multi-stakeholder panel discussion during the International Alliance of Patients’ Organization’s ( IAPO ) 6th Global Patients Congress, held in the UK on 29-31 March 2014. This was supported by Dame Sally Davies, Chief Medical Officer ( CMO ), UK Government, in her keynote address, who emphasised the importance of patient and public involvement: ‘Healthcare research should be carried out by and with members of the public, not just done for or to the public.’