News Archive: Press and media

As we approach September, Penney Cowan, IAPO Chair and Founder of the American Chronic Pain Association, calls on the community of people with pain and those who care for them, to start building the momentum of the campaign which aims to draw attention to the need for better understanding of what a...
The World Health Organization (WHO) invites you to participate in an online survey contributing towards the development of a normative guidance around self-initiated interventions for sexual reproductive health. In this article, Katthyana Aparicio, Programme Officer in the Department of Service...
Sheila Regina de Vasconcellos – Bakken Invitation Honoree 2015 and a patient living with Diabetes - explores the way forward for the fight against Diabetes after attending the 8th Global Patients Congress. Coming from Brazil, a country where resources are lacking and where there are few diabetes...
Cathy Trzaskawka, Head of Global Advocacy at Bristol-Myers Squibb (BMS), breaks down some of the lessons learnt at the 8th Global Patients Congress. I just recently attended my first ever IAPO Global Patients Congress in Miami. As an industry representative, and the industry partner helping to...
Each year, the Medtronic Foundation’s Bakken Invitation recognizes inspirational patients whose lives have been impacted by medical technology and who use their “extra life” to give back to others. Named after Medtronic co-founder Earl Bakken, the Bakken Invitation brings together patients who “...
PRESS RELEASE Thursday, 24 th May, Miami – Fight the Fakes is proud to announce that the International Alliance of Patients’ Organizations (IAPO) is joining as the campaign’s 36 th partner. By signing up to join Fight the Fakes , IAPO will support awareness raising about fake medicines generally,...
At IAPO’s upcoming congress Teva Pharmaceuticals will introduce Life Effects , a new patient-centric website. It features stories from people living with chronic conditions that focus on the impact their conditions have on their day-to-day lives. Teva created Life Effects after speaking to more...
World Multiple Sclerosis (MS) Day will take place on 30 May 2018. This year’s theme is Research and the campaign is called Bringing Us Closer. Find out how you can get involved and show your support. World MS Day, the only day of global solidarity for everyone affected by multiple sclerosis (MS),...
Every year, on 31 May, WHO and its partners, including the World Heart Federation, mark World No Tobacco Day to highlight risks associated with tobacco use and advocate for effective policies to reduce tobacco consumption. This year, World No Tobacco Day will focus on the important link between...
Margareth Ndomondo-Sigonda one of the speakers on the panel on Patient Empowerment in Regulation explains why improvement in medical products and pharmaceutical regulation is vital and how harmonization can be achieved. When it comes to medical products and pharmaceuticals, each country is required...
Lucy Watt, a palliative care patient advocate, explores the importance of advocacy for palliative care based on her experience as a patient living with a neuromuscular disease and intestinal failure in the perfect context of the Worldwide Hospice Palliative Care Alliance launching grants to support...
Kawaldip Sehmi, IAPO's CEO, explores the attempts made in the USA over the years towards Universal Health Coverage and more specifically what the present situation means in the face of the current president Donald Trump's tweet. All this is a foreshadowing of one of the sessions at the 8th Global...
FindMeCure Foundation and Chronic Pain Ireland together with the support of IAPO organized a webinar which aimed to unravel the process of mobilizing action towards helping patients living with chronic pain access treatments in development.Through an interview, Maya representing FindMeCure...
We invite you to register for Global Patients Congress 2018 so that we as organizations working in patient empowerment all over the world, can all respond to the need for empowering more patients through knowledge by working towards leveraging all our resources to facilitate broader communications...
IAPO has arranged for all delegates to be accommodated at the Miami Marriott Dadeland hotel at a special discounted IAPO rate. Please do seize this opportunity and book your room as rooms are selling out. This rate is available between 20th May 2018 - 29th May 2018 and you would need to have made...
On Wednesday 24th January 2018, Antonio Ciagalia, IAPO's Policy Manager represented IAPO at the 2018 European Meeting of the International Society of Medical Publication Professionals ( ISMPP ) where he joined a multi-stakeholder panel within which a stimulating discussion took place around the...
As IAPO's flagship event, the 2018 congress will be attended by an estimated 200+ delegates from across the world, who will share best practice, gain insight into pressing healthcare issues and meet with others passionate about patient-centred healthcare. This is your chance to join them...
Maya Zlatanova CEO FindMeCure discusses clinical trials and how helpful and safe they really are. The two questions seem different and similar all at the same time. But not if you ask a patient. At the moment, approximately 5 % of people know what a clinical trial is. At the same time, there is an...
The 8th Global patients Congress, Empowered Patients Building the Momentum, will take place from 24th-26th May 2018 in Miami in the sunshine State of Florida USA, at the Miami Marriott Dadeland. Congress brings together around 200 patient advocates from across the world. Organizations of all sizes...
Members of Community Development Awareness and Health Empowerment Foundation (CDAHEF) commemorated the 2017 Patients Solidarity Day (PSD) on Saturday, December 2, 2017 in Bashorun Community of Ibadan, Capital City of Oyo State of Nigeria. On Saturday, 2 nd December, 2017, the PSD activities were...
We are pleased to announce that the overall winner of our Patient Solidarity Day 2017 photo competition is Community Development Awareness and Health Empowerment Foundation (CDAHEF) – Nigeria. Congratulations, CDAHEF! CDAHEF was successful in submitting a photo that displayed creativity and the...
IAPO member, Richard Nii Yemoh Laryea of the Hepatitis Coalition of Ghana and Hepatitis Foundation of Ghana represented IAPO at the 3rd Biennial Scientific Conference on Medical Products Regulation in Africa. With a theme of “Sustaining the Momentum for Regulatory Harmonization in Africa”, the...
On this year’s Patient Solidarity Day, Psoriasis Association Taiwan located in the Western Pacific Region, was not absent in responding to this meaningful day for patients. This year we celebrated Patient Solidarity Day through coming together with other patients’ groups at the “Future Trends Forum...
IAPO member, Maria Fatima Garcia-Lorenzo from Philippine Alliance of Patient Organizations , represented IAPO at WHO Western Pacific Region Technical Advisory Group meeting on Universal Health Coverage. “A prosperous country is made of prosperous people, and people can only prosper if they are...
Diabetes is one of the largest global health emergencies of the 21st century. According to the IDF Diabetes Atlas Eighth Edition , released in November 2017, this pandemic continues to rise, seemingly inexorably, all over the world. An estimated 425 million adults are living with diabetes in 2017,...
Celebrating its 10 th Anniversary this year, the Malta Health Network (MHN) organised two training events as its celebration for Patient Solidarity Day inspired by the theme of ‘Patient Empowerment Through Knowledge.’ Both events, which offered introductory training to the European Patient...
Inspired by this year’s theme of patient empowerment through knowledge, Ataxia & Me, the Portuguese Association for Congenital Disorders of Glycosylation ( APCDG ) and others decided to launch a challenge to a group of patients, patient associations and artists : “What if all of us united and...
By "Fight the Fakes" One in ten medical products circulating in low- and middle-income countries is either substandard or falsified, according to latest WHO figures. It is estimated that somewhere between 72,000 and 169,000 children may die each year from pneumonia due to substandard and falsified...
We are delighted with the Patient Solidarity Day achievements this year. We had the highest number of supporters since the campaign began in 2011, with patient advocates from all over the world holding activities to mark the day. At least 175 organizations from 48 countries came together in...
The Stop TB Partnership has launched its TB REACH initiative’s sixth wave of funding for innovative and out of the box ideas, strategies, initiatives, and technologies which aim to increase the number of people diagnosed and treated for TB, to decrease the time to appropriate treatment and to...
On 15-17 September 2017, Migdalia Denis, IAPO board member and President and Founder of Pulmonary Hypertension Latin Society, presented at the International Society for Pharmacoeconomics and Outcomes Research’s (ISPOR) second plenary session, The Voice of the Patient, at its 6th Latin America...
Patient Information Forum has held a series of conversations with long-term condition patients to understand their experiences of being provided with health information, and what opportunities exist to improve how information can support and empower them. From the conversations, the following key points have been identified;
Devex in partnership with U.S Pharmacopeia explores the global health challenges caused by poor-quality medicines and approaches to achieving quality-assured medicines in low and middle income countries. Each year, the proliferation of substandard and falsified medicines puts the lives of millions...
John Mwangi, Head Middle Africa, Regulatory Affairs & Cluster Quality, Bayer East Africa explores medicine regulation harmonisation by giving us an African perspective with insight on what is to come. Access to medicines remains a big challenge in the African continent. Among the factors that...
Rwanda has launched a drone delivery network to transport vital blood supplies to far-flung areas of the country. Through a partnership with the Government of Rwanda, Zipline, a Silicon Valley Start-up will deliver all blood products for twenty hospitals and health centers starting this summer,...
Whoever wins the Director-Generalship of the World Health Organization (WHO) faces the twin challenge of not only revamping global public health but also promoting patient-centred healthcare. While candidates are promising leadership and bold change, improving the lives of patients from all around...
70 key healthcare individuals from across Latin America met in Panama this week to discuss some of the biggest challenges facing patients today.
The Governing Board of the International Alliance of Patients’ Organizations ( IAPO ) has announced the appointment of Mr Kawaldip Sehmi as the new Chief Executive Officer of IAPO .
The World Health Organization (WHO) made it unambiguously clear today that researchers have an ethical imperative to make results from all clinical trials – including past trials – publicly available.
Press release: A new resource has recently been launched to help Latin American patients understand biological medicines and make informed decisions about their care.
News release: Growing support for shared ethical principles from healthcare and medicines providers
The International Alliance of Patients’ Organizations (IAPO) has received an impassioned letter from our member , the Liberian United Youth for Community Safety and Development, which describes how the Ebola epidemic is having a dire effect on health facilities and on communities. Our member...
Wednesday 1 October 2014 Media alert for immediate release The International Alliance of Patients’ Organizations (IAPO) thanks Ms Jo Groves for her dedicated service as Chief Executive Officer after ten successful years with the organization. Ms Groves has resigned from the position in order to take up new challenges.
There was widespread consensus that drug regulators and patient groups need to work more closely together in Latin America at a multi-stakeholder seminar held in Rio de Janeiro, Brazil yesterday.
Ascot, United Kingdom, 31 March 2014 – This was the call from Stephen Murby Wright, Consumers Health Forum of Australia during a multi-stakeholder panel discussion during the International Alliance of Patients’ Organization’s ( IAPO ) 6th Global Patients Congress, held in the UK on 29-31 March 2014. This was supported by Dame Sally Davies, Chief Medical Officer ( CMO ), UK Government, in her keynote address, who emphasised the importance of patient and public involvement: ‘Healthcare research should be carried out by and with members of the public, not just done for or to the public.’
New Delhi, India, 17 December 2013 – “It is time that we came together as one voice” was the call from Dr Ratna Devi, CEO, DakshamA Health & Education Foundation, to patients’ organizations gathered at IAPO’s first multi-stakeholder seminar held in South-East Asia yesterday. The seminar entitled, ‘Meeting patients’ needs in South-East Asia – effective strategies for tackling NCDs and improving patient safety’, explored relevant issues in healthcare systems and patients’ needs from around the region.
Mexico City, Mexico, 24 September 2013 – “To achieve patient-centred access to healthcare in Latin America, patients need to be informed, empowered and involved in shaping our healthcare systems” stated Eva Maria Ruiz de Castilla, IAPO Governing Board Member. This echoed the discussions of the participants at the International Alliance of Patients’ Organizations (IAPO) multi-stakeholder seminar ‘Patient-centred access to healthcare in Latin America’ held yesterday.